What the HHT?
A blog for the HHT community
Cure HHT Announcements
30th Anniversary Celebration
Cure HHT’s 30th Anniversary kick-off is a virtual celebration was a huge success, with with presenters reflecting on the tremendous influence of the organization’s vision and future endeavors to find, treat and cure HHT over the past three decades. The event featured a Walk Down Memory Lane with some of our most influential supporters, a…
Read MoreFriends Virtual Trivia
Do the names Monica, Chandler, Ross, Rachel, Joey and Phoebe ring a bell? Then don’t miss Charm City’s “Friends” themed Trivia Night. Charm City is hosting their weekly Sunday Trivia Night for charity on April 11th, 2021 @ 8:00 pm (EDT) to benefit Cure HHT. Tickets are $15.00 and a portion of all proceeds will…
Read MoreLet’s Play! Virtual Trivia
Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this is the event for you! Join Cure HHT and Charm City Trivia on Thursday, March 25th for an entertaining night where everyone knows something about everything. Come together for a fast-paced fun game of trivia featuring music, sports, entertainment and…
Read MoreTalk Circle: Living With HHT Virtual Book Club Event
Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m. (EST) (Final Night of the Winter Series) It’s the three year anniversary of the publication of Living with HHT – Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia and we are celebrating with a modern twist on a traditional book club! Join…
Read MoreCure HHT Research Network: Clinician and Scientist Surveys
The Cure HHT Research Network has put together surveys for our medical and basic science communities that will help us to identify research priorities in HHT. Launched in early 2020, the Cure HHT Research Network (CHRN) aims to bring safe, effective treatments to patients more quickly by prioritizing research based on patient needs, broadening and…
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