What the HHT?

A blog for the HHT community

Losing My Dog, Teddy

By Cheryl Lane | June 30, 2016

Just after I learned I might have HHT, my family and I moved from the Boston area to Atlanta. Emory University Hospital was where I had my first PAVM embolization in 1993. The projected two hour operation extended to just over four hours, but was pronounced successful, so we were pleased. The PAVM was coiled…

Keep the Hope, Keep the Faith

By Tania Competiello | June 23, 2016 |

Allow me to introduce myself as I begin to write about my personal journey with HHT and how I arrived at where I am today: My name is Tania Competiello, I am 39 years old of Portuguese descent. I was born and raised in Portugal until the age of 11, when my family immigrated to…

The Genetic Puzzle of HHT

By Cheryl Lane | May 25, 2016 |

I never made it to my youngest daughter’s first birthday party in 1993. Due to intense pain in my back, I had to go to the local emergency room. I had been quite healthy until then. Because I was over 40, a routine chest X-ray was ordered with other diagnostics. They thought I might have…

HHT – A Team Sport

By Desiree Clark | May 18, 2016

If you’re a “sports” parent, you understand the anticipation of getting your child to varsity year. Many of us pick up second jobs to pay the fees for city recreation league, school league, church league and all the other ways we can “league” our kids to first string. I’m not a pushy parent, but definitely…

A Surprise Diagnosis

By hht_admin | May 11, 2016

In the summer of 2011 I was 27 years old, and upon a recommendation from my mother, I scheduled an appointment for a routine physical since I had “good insurance” and hadn’t received a physical since high school. But why would I need a physical? I’m 27, healthy, and active… Almost immediately the Internal Medicine…