What the HHT?
A blog for the HHT community
Advocacy
New Federal Momentum for HHT: $3M for Centers and Dedicated Research Eligibility
We are thrilled to share two major wins to celebrate today: the President has signed the FY26 funding agreement which includes $3,000,000 for HHT Treatment Centers and—huge for the research world—“Hereditary Hemorrhagic Telangiectasia (HHT)” is listed as its own eligible topic area under the Peer Reviewed Medical Research Program (PRMRP)! Next stop: the President’s signature…
Read MoreFacebook Live: The Power of Advocacy
Advocacy changes lives—and it changes policy. Join Cure HHT for a free 45-minute Facebook Live panel: The Power of Advocacy. What we’ll cover – What HHT Capitol Hill Day is (and what it’s not) – What to expect as a participant – What we’re advocating for and why it matters – Q&A: bring your questions—especially…
Read MoreReflections from the Next Generation
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole system disease, one that touches organs, families, and futures.
Read MoreCapitol Hill Day 2026
This is your moment. Join us in Washington, DC. Stand up for the HHT community. Help make HHT impossible to overlook — and impossible to delay. Let’s make 2026 the year lawmakers finally recognize the urgency we live with every day and commit to the progress we know is possible. Become an HHT advocate: curehht.org/advocacy26
Read More2025 HHT Capitol Hill Day
2025 HHT Capitol Hill Day Wednesday, September 10, | 4-6pm ET Make a difference and let your voice be heard. Join us for an HHT Congressional Briefing in Washington, DC! Confirm your interest here.
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