What the HHT?
A blog for the HHT community
Posts by Cure HHT
Summer, Summer, Summertime and HHT
Summer is kicked off with a bang for the Cure HHT family with HHT month and the various activities that take place during the month of June. However, while engaging in various outdoor fundraising activities that benefit the cause and enjoying the long and hazy, hot days of the season, there are particular precautions that…
Read MoreHosting our First Blood Drive for HHT Awareness!
Since marrying into an HHT family, I have felt a need to do more to advocate for my family members, raise awareness, and help in any way I can. I know how precious both money and blood can be to this community, but we are not always in a financial position to give to the…
Read MoreHHT Global Awareness Day
Today is June 23, 2017 and it’s HHT Global Awareness Day! As a person who has HHT disease and the author of a new book called Living with HHT, I’m excited to be part of this special day devoted to HHT awareness—and I hope my book will contribute to HHT awareness every day. If you’re…
Read MoreEleanor goes to the dentist with her prophylactic antibiotics!
As a child, I LOVED going to the dentist. I hope by starting Eleanor out young, I can instill an excitement about dental health in her to avoid any fears/anxieties about the dentist in the future. Going to the dentist with HHT can add a bit of complexity. If you have or don’t know if you…
Read MoreIt’s All About Balance
This month, I’m spreading positivity! Focusing on me, and you, and how we should be taking better care of our overall well-being. Remember, you may have HHT, but HHT does not have you – it does not define you and all you aspire to be! I’ll be the first to admit some days are easier…
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