What the HHT?
A blog for the HHT community
Posts by Ashley Watkins
UF Health named HHT Center of Excellence
Cure HHT is excited to announce that UF Health has been named the first HHT Center of Excellence in Florida and the 31st CoE in North America. Cure HHT recognizes hospitals equipped with the personnel, expertise, commitment and resources to provide comprehensive evaluation, treatment and education to individuals with HHT and their families. Recognition as an…
Read MoreNewsletter Summer 2022
June Awareness Month
HHT Awareness Month is here, and we are expanding our reach on a world-wide level as we launch our #LetTheWorldHearUs campaign.
The world is all around…waiting to hear your voice. Sharing your HHT experiences—the good and the bad—can make all the difference. By joining us this Awareness month, together we can reach the ears of the health care industry, legislative decision-makers, and the global population to bring awareness forth about a disease that impacts 1 in 5000 people worldwide. With 90% of HHT patients still undiagnosed, HHT has gone unheard for far too long. We need to change that once and for all!
Read MoreSpreading Awareness 1 Mile at a Time
“What is HHT?” It’s a question Marijo McCune gets asked often, and it’s exactly what she hoped to accomplish when she made the decision to create the license plate that reads, ‘CURE HHT.’ “Though I may never know how many people have asked Google [What is HHT], I’m sure there’s been many. They say curiosity…
Read MoreSpreading Awareness 1 Mile at a Time
I’ve always been drawn to vanity plates. They really can stimulate your mind and keep you guessing. Some are more self-explanatory than others, and others can lead you on a search asking “what is that”??? Which is exactly what I hoped to accomplish with my “CURE HHT” Ohio license plate. I want people to ask…
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