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What the HHT?

A blog for the HHT community

Thank You for an Amazing Year

We want to extend a heartfelt thank you as we celebrate an amazing year of community and progress in 2022. Watch a year in review here.

If you’d like to learn more about the cutting edge developments happening in HHT science and research, click here.

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Help Keep Us On the Cutting Edge

The turn of the calendar to December marks the kickoff of our year-end appeal, and this year we are asking for your continued support to help keep us #OnTheCuttingEdge. The milestones we have our sights set on next are the kinds of things we could have only dreamed about just a few short years ago. A future exists where therapies – not surgeries – treat the chronic aspects of this disease. And that future is closer than you might realize!

Cure HHT remains a driving force for medical and scientific advancements in HHT, and throughout the month, we will be highlighting the transformational work being done…

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NEW! Text to Give

You can now support Cure HHT this holiday season via text! As an added bonus, when you make a donation through your mobile device, you can choose to receive future HHT news and updates directly to your phone. Message & data rates may apply. Donate today to have your gift DOUBLED by a generous group of donors. To give, text “donate” to (410) 237-0199.

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New Therapeutic Development Arm Takes Shape

A Message From Marianne Clancy, Cure HHT Executive Director:

As you have read in the fall edition of our newsletter, our foundation has invested in the creation of a new “Therapeutic Development Arm” to help us more directly collaborate with the medical and scientific community to fast-track life-changing breakthroughs in HHT.

I am writing to you now to share the tremendously exciting news that Dr. Murali Chakinala will be joining Cure HHT in the role of Senior Clinical Research Advisor. In this role…

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