What the HHT?
A blog for the HHT community
The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at 11 research centers across the United States. Find centers and check your eligibility.Read More
March 19, 2021 | Meta | By Jennifer L. Minnick “At a recent workshop about Meta, Executive Director of Cure HHT Marianne Clancy noticed a new scientific paper about the rare disease she’s focused on curing — in the form of a case report from Sudan. Hereditary Hemorrhagic Telangiectasia, or HHT, is a genetic disorder that causes…Read More
International HHT Guidelines Webinar Series Topic: Pregnancy & Women’s Issues Mon., May 17th | 5:00 p.m. (ET) Join Dr. Filomena Meffe, Chief, Department of Obstetrics and Gynecology, Toronto HHT Centre of Excellence and Dr. Andrea Lausman, Maternal fetal medicine specialist, Toronto HHT Centre of Excellence as they discuss why pregnant woman with HHT should be…Read More
Las Guías Internacionales de HHT Anemia 27 de Marzo | 9:00 a.m. (ET) (10 a.m. Argentina) El Dr. Marcelo Serra, médico internista y Director de la Unidad HHT, Hospital Italiano de Buenos Aires (Centro de Referencia) y la Dra. Yesica Lijdens (Otorrinolaringologa de la Unidad HHT Hospital Italiano de Buenos Aires) nos brindarán información sobre…Read More
Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this is the event for you! Join Cure HHT and Charm City Trivia on Thursday, March 25th for an entertaining night where everyone knows something about everything. Come together for a fast-paced fun game of trivia featuring music, sports, entertainment and…Read More