What the HHT?

A blog for the HHT community

Posts by Ashley Watkins

Announcement from Cure HHT Executive Director (COVID-19)

A Message from Cure HHT Executive Director, Marianne Clancy To our HHT Community: Two years ago, we coined the phrase #InThisTogether as part of our annual year-end appeal.  Now more than ever, this simple phrase has been on our minds and is driving all that we do during these unprecedented times surrounding the outbreak of the…

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Patient & Physician Conference – Washington (Postponed)

Hyatt Regency – Bellevue, Washington **POSTPONED** Join us at our Patient & Physician conference in Washington for a unique education experience in the near future! This conference has been postponed from May 2020 due to health concerns related to COVID-19. Check back soon for updates on new dates and open registration.

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HHT in the News: “World Rare Diseases Day: Three people on how their unusual conditions affect their lives” (Article 3)

MacGinty, Michael - Irish Times

February 27, 20202 | Irish Times | by Sylvia Thompson – “Michael MacGinty from Letterkenny, Co Donegal, says that watching family members having serious unexplained nose bleeds has been part of his life for as long as he can remember. “My earliest memories are of my grandmother constantly clutching a handkerchief that was blood-stained. My…

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