Your donations do more than you may realize

Hi! For those who may not know me, I’m Cassi Friday and I’m the Director of Research here at Cure HHT. That’s not the only hat I wear — My husband, Anthony has HHT, and I’m a mom of three little kiddos, two who also have HHT. It goes without saying, I’m deeply passionate about improving lives and finding better treatments for our loved ones affected by this disease.

I wanted to write to share more about what exactly we do here at the foundation. Your donations do more than you may even realize!

Yes, we are here to support this community – connecting you to expert care, providing support and resources, educating doctors and more. But we do more than that! Way more than I realized prior to working for Cure HHT, and the list is only continuing to grow!

We work every day to build new relationships with scientists, encourage focus on HHT from biotech companies, we lead and participate in clinical trials and several other research studies, we work to connect researchers with patients, work hand-in-hand with those developing new treatments, inform clinical trial design, develop biorepositories, advocate for research funding, give research grants, and so much more.

Just the other day, I took our daughter to an HHT doctor’s appointment. She looked at me and said: “I wish HHT didn’t exist.”

I share that wish – it came right after I was able to spend the day working on-site with some of our research partners, planning a new study to launch.  We’re working tirelessly on making my daughter’s wish happen.

Now more than ever, there are so many exciting advancements happening. But we need support from this amazing community to continue our work to drive the science behind all the research studies and treatments we need.

This year-end giving season, I’d like to invite you to join us in making a real difference. With your help, we can continue to break barriers and bring hope to families like mine, all while improving care for HHT patients everywhere.

Thank you for being part of our mission! I love what I do. But my goal is to put myself out of a job one day by curing this thing!

With gratitude,

Cassi Friday, PhD
Director of Research, Cure HHT