What the HHT?

A blog for the HHT community

Posts Tagged ‘family’

7th Annual Night of Hope to Benefit Cure HHT

When: Saturday, March 16, 2019 from 5:00-11:00pm EST   Where: Plymouth Manor: Plymouth, MI   Details: Join the Nissan Family for the 7th Annual Night of Hope, an event to raise money and awareness for HHT. There will be games, auctions, dinner, dancing, and more!  To learn more about this special evening and to register as an individual attendee,…

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Sharing to make a difference

Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals in the Salt Lake city area. It all started by saying ‘Yes’ to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…

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Colfax Races HHT Team

May 18-19, 2019 Denver, CO Join our HHT team at Denver’s largest running weekend! You can sign up to participate in a 5K, 10-Mile, Relay, Half Marathon or Marathon. Help us raise awareness and funds for HHT research, and don’t miss out on this incredible experience – sign up today!

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