What the HHT?
A blog for the HHT community
When: Saturday, March 16, 2019 from 5:00-11:00pm EST Where: Plymouth Manor: Plymouth, MI Details: Join the Nissan Family for the 7th Annual Night of Hope, an event to raise money and awareness for HHT. There will be games, auctions, dinner, dancing, and more! To learn more about this special evening and to register as an individual attendee,…Read More
Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals in the Salt Lake city area. It all started by saying ‘Yes’ to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…Read More
Believe it or not, we’ve come a long way in diagnosing and treating HHT. This fall season we are expressing our gratitude to everyone who has helped us so far in our journey to find a cure to HHT.Read More
May 18-19, 2019 Denver, CO Join our HHT team at Denver’s largest running weekend! You can sign up to participate in a 5K, 10-Mile, Relay, Half Marathon or Marathon. Help us raise awareness and funds for HHT research, and don’t miss out on this incredible experience – sign up today!Read More
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…Read More