What the HHT?
A blog for the HHT community
Posts Tagged ‘family’
Sharing to make a difference
Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals in the Salt Lake city area. It all started by saying ‘Yes’ to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…
Read MoreMy Experience with Online Community Groups + HHT: The Good, the Bad and the Ugly (Part 3)
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…
Read MoreMy Experience with Online Community Groups + HHT: The Good, the Bad and the Ugly (Part 2)
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…
Read MoreMy Experience with Online Community Groups + HHT: The Good, the Bad and the Ugly (Part 1)
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…
Read MoreLiving with HHT Book
Have you read my new book, Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia? It’s designed to tell you everything you need to know about HHT to keep yourself and your family as healthy as possible and to cope with the stresses of having HHT. I’m happy to report that the book, released…
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