Nosebleeds
Resources addressing the treatment of nosebleeds.
Related Resources
Virtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded)
Webinar – 2020Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and HHT patient, Chelsea McBride as they discuss EVERYTHING nosebleed related. From current drug therapies and surgical options, to food triggers and more, Dr….
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Physician Fact Sheet
Fact Sheet – 2020A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…
MoreRose Geranium Oil Compound
Scientific Literature – 2020This article is available for public use and does not require purchase. Click to view the full article.
MoreBevacizumab (Avastin) Use In HHT
Policy Statement – 2020Hereditary hemorrhagic telangiectasia (HHT, also known as OslerWeber-Rendu Syndrome) is a condition that is characterized by focal proliferation of blood vessels (vascular malformations) in multiple organs. Two of the most commonly affected organs in…
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The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreSystemic bevacizumab for the treatment of chronic bleeding in HHT
Scientific Literature – 2018Journal of Internal Medicine. Authors: Al-Samkari, H., Kritharis, A., Rodriguez-Lopez, J.M., and Kuter, D.J. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MorePazopanib May Reduce Bleeding in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018Angiogenesis. Authors: Marie E. Faughnan, James R. Gossage, Murali M. Chakinala, S. Paul Oh, Raj Kasthuri, Christopher C. W. Hughes, Justin P. McWilliams, Joseph G. Parambil, Nicholas Vozoris, Jill Donaldson, Gitanjali Paul, Pamela Berry, and Dennis…
MoreVitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018A retrospective chart review of 198 patients was performed to explore the relationship between vitamin D levels and the ESS in order to explore the association between vitamin D levels and mild versus severe epistaxis, as well as the overall epistaxi…
MoreVitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018Biomarkers in Medicine. Authors: Lauren Marissa Weber, Jamie McDonald and Kevin Whitehead This article is available for public use and does not require purchase. Click to view the full article.
MoreAvastin Indication Table
Article – 2018Table detailing Criteria for IV Bevacizumab (Avastin) Use for Epistaxis and GI Bleeding. Resource taken from: Iyer, V. N., Apala, D. R., Pannu, B. S., Kotecha, A., Brinjikji, W., Leise, M. D., … Swanson, K. L. Intravenous Bevacizumab for Ref…
MoreIntravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia Related Epistaxis and Gastrointestinal Bleeding
Scientific Literature – 2018Mayo Clinic. Authors: Vivek N. Iyer, MD, MPH; Dinesh R. Apala, MBBS; Bibek S. Pannu, MBBS; Aditya Kotecha, MBBS; Waleed Brinjikji, MD; Michael D. Leise, MD; Patrick S. Kamath, MD; Sanjay Misra, MD; Kebede H. Begna, MD; Rodrigo Cartin-Ceba, MD; Hilary…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Health Benefits of Geranium Essential Oil
Article – 2017The Essential Oil of Geranium has a lot to offer HHT patients. Geranium Oil can stop bleeding in two ways: it causes blood vessels to contract and helps stop blood flow and it speeds up coagulation or clotting of blood.
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Epistaxis Severity Score
Patient Tool – 2017The ESS was developed through a Cure HHT research grant. This online tool is to calculate the severity score of nosebleeds. Want to know if your nosebleed treatment is effective? Treatment of nosebleeds (epistaxis) should be determined by a care prov…
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Online Education: Research Roundtable
Join us as we delve into all of the exciting clinical research projects underway in HHT! Cassi Friday, PhD (Overview) will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (B…
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