![](https://curehht.org/wp-content/uploads/2020/02/Newly-Diagnosed-iStock_000022806121-wpcf_400x267.jpg)
Newly Diagnosed
Resources to guide newly diagnosed patients through initiating screening and treatment locally and at HHT Centers of Excellence.
Related Resources
![](https://curehht.org/wp-content/uploads/2018/04/Cover-HHT-Overview_Screening-Guidelines_Meek-300x232.jpg)
HHT Overview and Screening Guidelines (recorded)
Webinar – 2018Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HHT for adults and children, including the Curacao diagnostic criteria, general screening pr…
More![](https://curehht.org/wp-content/uploads/2017/12/Living_With_HHT_Book_Cover-300x200.jpg)
Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
Patient Tool – 2017By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how…
More![](https://curehht.org/wp-content/uploads/2017/11/My-Family-has-hht_Image-1-300x197.png)
My Family Has HHT Pamphlet
Brochure – 2017Looking for a simple explanation of HHT to share with your children and those who care for them everyday? This pamphlet is to assist children who may be uncertain or anxious about the symptoms of HHT experienced by themselves and/or their parents. Th…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
More![](https://curehht.org/wp-content/uploads/2017/11/Learn-More-About-HHT_Image-228x300.png)
Learn More About HHT Brochure
Brochure – 2017Everything you need to know about HHT all in one place. You can gain a comprehensive understanding of the disease from diagnosis, screening, genetic testing and treatment of the disease. Special attention is given to anemic patients, pregnant women a…
More![](https://curehht.org/wp-content/uploads/2017/11/Cover-Slide-300x223.png)
Ask the Doctor
Webinar – 2017Dr. James Gossage, Director of the Pulmonary Vascular Disease program and the HHT Center of Excellence at Augusta University, answers questions about HHT screening, treatment and management. Members of the Cure HHT community submitted a variety of qu…
More20-year Follow-Up Study of Danish HHT Patients – Survival and Causes of Death
Scientific Literature – 2016Orphanet Journal of Rare Diseases. Authors: Anette Kjeldsen, Katrine Saldern Aagaard, Pernille Mathiesen Tørring, Sören Möller and Anders Green. This article is available for public use and does not require purchase. Click to view the full article.
More![](https://curehht.org/wp-content/uploads/2014/11/Talking-to-Your-Physician.png)
Talking to Your Physician about HHT
Fact Sheet – 2016It’s important to talk to your doctor about your HHT. Use this fact sheet as a resource when you and your doctor discuss your HHT treatment and management plan.
More![](https://curehht.org/wp-content/uploads/2017/11/Screen-Shot-2019-10-29-at-1.48.01-AM-300x154.png)
Living with HHT
Fact Sheet – 2016Living with HHT can be stressful at times, and most people can manage it. HHT does not have to define your life. Follow these six simple steps and start living life with HHT.
More![](https://curehht.org/wp-content/uploads/2017/11/HHT-and-Depression.png)
HHT & Depression
Fact Sheet – 2016The stress of living with a genetic disease can lead to depression. Learn how to recognize the signs and symptoms.
More![](https://curehht.org/wp-content/uploads/2017/11/My-partner-has-HHT.png)
My Partner Has HHT
Fact Sheet – 2016When your partner or spouse has HHT, you are also affected by the disease. Learn how your partner is affected by HHT, what you can do to help them, how to prepare for parenting and ways to take care of yourself.
More![](https://curehht.org/wp-content/uploads/2014/11/Know-the-Signs-and-Symptoms.png)
Know the Signs & Symptoms of HHT
Fact Sheet – 2016Recognizing HHT symptoms is half the battle. Knowing the signs and symptoms of HHT can help save a life.
More![](https://curehht.org/wp-content/uploads/2017/11/Diagnosis_Misdiagnosis-3.png)
Diagnosis and Misdiagnosis of HHT
Fact Sheet – 2016HHT signs and symptoms are not recognized and often mistaken for other conditions. Misdiagnosis and delay in diagnosis pose the greatest risk to a person with HHT. Knowing the common misdiagnoses can lead to faster identification of HHT, life-saving…
More![](https://curehht.org/wp-content/uploads/2018/02/18622139_10155174704617752_4628205667252873123_n-264x300.jpg)
HHT Facts at a Glance
Fact Sheet – 2016The most critical HHT information highlighted on a single sheet. HHT Quick Facts provides you and your physician critical information about organs typically involved, symptoms of the disease, need for prophylactic antibiotics and use of IV filters.
More![](https://curehht.org/wp-content/uploads/2014/11/Advice-for-newly-diagnosed.png)
Advice For People Newly Diagnosed With HHT
Fact Sheet – 2016You’ve just been diagnosed with HHT, now what? This fact sheet will help guide you through your recent diagnosis.
MoreRelated News
![](https://curehht.org/wp-content/uploads/2024/08/Ask-the-Nurse-Social-September-2024-wpv_550x300_center_center.png)
Ask the Nurse: September Session
Join us as Dr. Jeb Justice, co-director of the HHT Center of Excellence at University of Florida, goes over a variety of ways you can help manage your HHT-related nosebleeding. Treatments available fo…
![](https://curehht.org/wp-content/uploads/2024/05/Social-Share-wpv_150x100_center_center.jpg)
June Awareness – Be an HHT Changemaker!
June 1, 2024![](https://curehht.org/wp-content/uploads/2024/04/Diagonal-Therapeutics_article-wpv_150x100_center_center.jpg)
A Monumental $128 Million Step Forward for HHT Research
April 3, 2024![](https://curehht.org/wp-content/uploads/2024/03/HHT-CME-graphic-1-wpv_150x100_center_center.jpg)
HHT Continuing Education Program for medical professionals
March 22, 2024![](https://curehht.org/wp-content/uploads/2024/03/IMG_3674_cropped-scaled-wpv_150x100_center_center.jpg)
Cure HHT Takes on Capitol Hill
March 16, 2024![](https://curehht.org/wp-content/uploads/2024/02/SciCon-15_Logo-France-rectangle-wpv_150x100_center_center.jpg)