
Newly Diagnosed
Resources to guide newly diagnosed patients through initiating screening and treatment locally and at HHT Centers of Excellence.
Related Resources

Backpack Health – HHT Specific App Instructions
Patient Tool – 2021Backpack Health is a comprehensive health data management app (available for iOS, Android and web) designed specifically for patients and families with HHT. This video provides helpful instructions for use of the Backpack Health App, specific to HHT…
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WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
Webinar – 2021Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr. Marcelo Serra, especialista en Medicina Interna y Director de la Unidad de HHT del Hospital Italiano de Buenos Aires, brinda una visión general de HHT que es comprensible…
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Imaging & HHT
Fact Sheet – 2021Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.
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Diagnosis of HHT
Fact Sheet – 2021Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.
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HHT International Clinical Guidelines (2020)
Guidelines – 2020Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document to share with your physician. It outlines the screening, treatment and management of HHT a…
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My HHT Diagnosis Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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My HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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Physician Fact Sheet
Fact Sheet – 2020A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…
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Cure HHT Social Media Channels
Patient Tool – 2020Get the lastest information on everything HHT — clinical trials, educational events, regional awareness activities, revised clinical guidelines, COVID-19 updates and so much more. Stay connected with Cure HHT!
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Living with HHT (recorded)
Webinar – 2020Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships. In addition, learn coping skills that can help you live better with HHT, get tips on how t…
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HHT Overview and Screening Guidelines (recorded)
Webinar – 2018Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HHT for adults and children, including the Curacao diagnostic criteria, general screening pr…
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Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
Patient Tool – 2017By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how…
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My Family Has HHT Pamphlet
Brochure – 2017Looking for a simple explanation of HHT to share with your children and those who care for them everyday? This pamphlet is to assist children who may be uncertain or anxious about the symptoms of HHT experienced by themselves and/or their parents. Th…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
MoreRelated News

International HHT Guidelines: Overview & My HHT Care
International HHT Guidelines Webinar Series Topic: Guidelines Overview & My HHT Care Wed., March 3th | 7 p.m. (ET) Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence…

Lindsay Vos Delivers Keynote Speech at the HFA Annual Symposium
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Ask the Doctor – HHT and PH (recorded)
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