Lungs
Resources for understanding issues that affect the lungs in HHT patients including lung AVMs and pulmonary hypertension. This section will include screening recommendations and treatment options.
Related Resources
HHT & Stroke
Fact Sheet – 2016Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can affect children and young adults as well. Learn what causes a stroke and how to lower your risk.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
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Impact of Pulmonary Arterivenous Malformations on Respiratory-Related Quality of Life in Patients with HHT
Scientific Literature – 2014PLOS One. Authors: Sandra Blivet, Daniel Cobarzan, Alain Beauchet, Mostafa El Hajjam, Pascal Lacombe, and Thierry Chinet. This article is available for public use and does not require purchase. Click to view the full article.
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Clinical Implications of Pulmonary Shunting on Contrast Echocardiography
Scientific Literature – 2014Author: Sebastiaan Velthuis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreClinical Implications of Pulmonary Shunting on Contrast Echocardiography
Scientific Literature – 2014Pulmonary right-to-left shunting can be encountered using transthoracic contrast echocardiography (TTCE) with agitated saline. Diseases associated with pulmonary shunting on saline TTCE include hereditary hemorrhagic telangiectasia (HHT), hepatopulmo…
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Cerebral Abscesses among Danish Patients with HHT
Scientific Literature – 2013Acta Neurol Scandinavica. Authors: A. D. Kjeldsen, P. M. Tørring, H. Nissen, and P. E. Andersen. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreWhat are the Radiation Risks of CT?
Scientific Literature – 2012U.S. Food & Drug Administration. This article is available for public use and does not require purchase. Click to view the full article.
MoreRole of Contrast Echocardiography in Screening for Pulmonary Arteriovenous Malformation in Patients with HHT
Scientific Literature – 2010CHEST. Author: James R. Gossage, MD, FCCP This article is available for public use and does not require purchase. Click to view the full article.
MoreInterventional Treatment of Pulmonary Arteriovenous Malformations
Scientific Literature – 2010World Journal of Radiology. Authors: Poul Erik Andersen and Anette Drøhse Kjeldsen. This article is available for public use and does not require purchase. Click to view the full article.
MoreA Brain Abscess Following Dental Extractions in a Patient with HHT
Scientific Literature – 2010The British Journal of Oral & Maxillofacial Surgery. Authors: P. Corre, C. Perret, B. Isidor, and R. H. Khonsari. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreClinical Outcomes of Pulmonary Arterial Hypertension in Patients Carrying an ACVRL1 (ALK1) Mutation
Scientific Literature – 2010American Journal of Respiratory and Critical Care Medicine. Authors: Barbara Girerd, David Montani, Florence Coulet, Benjamin Sztrymf, Azzeddine Yaici, Xavier Jaïs, David Tregouet, Abilio Reis, Valérie Drouin-Garraud, Alain Fraisse, Olivier Sitbon, D…
MoreThe Pulmonary Vascular Complications of Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2009The European Respiratory Journal. Authors: M. E. Faughnan, J. T. Granton, and L. H. Young. This article is available for public use and does not require purchase. Click to view the full article.
MoreAnesthetic Considerations for the Patient with HHT (Osler-Weber-Rendu Syndrome)
Scientific Literature – 2009AANA Journal. Author: Kathleen M. Z. Peiffer, CRNA, MSN. This article is available for public use and does not require purchase. Click to view the full article.
MoreContrast Echocardiography for Pulmonary Arteriovenous Malformations Screening: Does Any Bubble Matter?
Scientific Literature – 2008European Journal of Echocardiography. Authors: P. Gazzaniga, E. Buscarini, G. Leandro, L. Reduzzi, M. Grosso, G. Pongiglione, C .Pedrinazzi, L. Lanzarini, V. Portugalli, P. Blotta, P. Forner, E. Boccardi, F. Pagella, G. Manfredi, C. Olivieri, A. Zamb…
MorePulmonary Arteriovenous Malformations and Migraine: A New Vision
Scientific Literature – 2008Respiration. Authors: M. C. Post, M. W. F. van Gent, R. J. Snijder, J. J. Mager, W. J. Schonewille, H. W. M. Plokker, and C. J. J. Westermann. This article can be purchased directly from the publisher. Click to view the article description and purcha…
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A major new study published in Blood shares early findings from CHORUS, the first national U.S. registry created to track the real-world impact of HHT. The report includes data from the first 600 part…
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