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HHT in children

Resources for understanding the different screening and treatment needs in children.

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Related Resources

Mi CHECKLIST Sobre HHT Cuidados: Mi Hijo

Español, Patient Tool – 2024

Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su médico. Estas listas de verificación se basan en el cuidado recomendado en las guías de HHT…

Niños y HHT

Español, Fact Sheet – 2024

Hoja informativa complementaria a los recursos para pacientes de Mi Checklist Sobre HHT Cuidados, y basada en las actualizaciones de las Segundo HHT Internacional Directrices publicadas en Annals of Internal Medicine en 2020.

Imágenes Diagnósticas y HHT

Español, Fact Sheet – 2024

How to Be an HHT Changemaker Part 1: Drive Research (Recorded)

Webinar – 2024

Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Co…

Caring for HHT Through the Generations (Recorded)

Webinar – 2024

Drs. Adrienne Hammill, Center Director at Cincinnati Children’s Hospital and Kevin Whitehead, Center Director at University of Utah. Dr. Hammill guides you through the early stages of life, covering genetic testing, prenatal care, and the significanc…

Mi CHECKLIST Sobre HHT Cuidados: Adolescencia

Español, Patient Tool – 2023

Research Roundtable: An Inside Look at Exciting Clinical Trials

Webinar – 2023

Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial…

Nosebleed Management – Nurse Cards

Patient Tool, Provider Tool – 2022

This card contains helpful tips for nosebleed management in a format that is ideal for providers who may not be familiar with the care required for HHT-related nosebleeds. Additionally, the card is available for purchase in our store on durable cards…

Back to School (tips for caregivers of children with HHT)

Video – 2022

Facebook Live event featuring Cure HHT Chief Medical Officer, Scott Olitsky, MD, and school nurse, Leslie A. Perry, RN, MS as children gear up and get ready to head back to school. The duo covers a range of topics from how to discuss HHT with your sc…

A Comprehensive Guide to Managing Your HHT

Brochure, Fact Sheet, Patient Tool – 2022

We’ve taken the International HHT Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Gui…

International HHT Guidelines: Pediatrics (Recorded)

Webinar – 2021

Dr. Andrew White, Co-Director, Washington University / St. Louis Children’s Hospital HHT Center of Excellence and Dr. Adrienne Hammill, Director, Cincinnati Children’s Hospital HHT Center of Excellence discuss the new pediatric International HHT Guid…

International HHT Guidelines – Overview (Recorded)

Webinar – 2021

Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. F…

Diagnosis of HHT

Fact Sheet – 2021

Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.

Children & HHT

Fact Sheet – 2020

Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.

My Teen Years HHT Care Checklist

Patient Tool – 2020

The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…

HHT in children

Resources for understanding the different screening and treatment needs in children.

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Knowledge is Power: The 5 Biggest Changes in HHT Care