Anemia/ Iron Deficiency
Resources addressing the causes, symptoms, and treatment of anemia/iron deficiency.
Related Resources
The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreExecutive Summary – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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Anemia and Iron Deficiency in HHT (recorded)
Webinar – 2019Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. Dr. Adrienne Hammill, Director at the Cincinnati HHT Center of Excellence, discusses the most effective ways…
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Eating for Health: Dietary Choices that Impact Bleeding
Webinar – 2019Ever wonder if certain foods trigger nosebleeds? Lisa Mannik, Registered Dietitian in the division of respirology at St. Michael’s Hospital HHT Centre in Toronto, Canada, identifies common foods that can increase the bleeding risk in HHT patients. Sh…
MoreSystemic bevacizumab for the treatment of chronic bleeding in HHT
Scientific Literature – 2018Journal of Internal Medicine. Authors: Al-Samkari, H., Kritharis, A., Rodriguez-Lopez, J.M., and Kuter, D.J. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MorePazopanib May Reduce Bleeding in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018Angiogenesis. Authors: Marie E. Faughnan, James R. Gossage, Murali M. Chakinala, S. Paul Oh, Raj Kasthuri, Christopher C. W. Hughes, Justin P. McWilliams, Joseph G. Parambil, Nicholas Vozoris, Jill Donaldson, Gitanjali Paul, Pamela Berry, and Dennis…
MoreHHT: Diagnosis and Management from the Hematologist’s Perspective
Scientific Literature – 2018This review discusses the biology of HHT, management issues that face the practising hematologist, and considerations of future directions in HHT treatment. The diagnosis of hereditary hemorrhagic telangiectasia is clinical, based on the Curaçao crit…
MoreHHT: Diagnosis and Management from the Hematologist’s Perspective
Scientific Literature – 2018Haematologica. Authors: Athena Kritharis, Hanny Al-Samkari, and David J Kuter. This article is available for public use and does not require purchase. Click to view the full article.
MoreAvastin Indication Table
Article – 2018Table detailing Criteria for IV Bevacizumab (Avastin) Use for Epistaxis and GI Bleeding. Resource taken from: Iyer, V. N., Apala, D. R., Pannu, B. S., Kotecha, A., Brinjikji, W., Leise, M. D., … Swanson, K. L. Intravenous Bevacizumab for Ref…
MoreIntravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia Related Epistaxis and Gastrointestinal Bleeding
Scientific Literature – 2018Mayo Clinic. Authors: Vivek N. Iyer, MD, MPH; Dinesh R. Apala, MBBS; Bibek S. Pannu, MBBS; Aditya Kotecha, MBBS; Waleed Brinjikji, MD; Michael D. Leise, MD; Patrick S. Kamath, MD; Sanjay Misra, MD; Kebede H. Begna, MD; Rodrigo Cartin-Ceba, MD; Hilary…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Iron Preparation Charts
Article – 2017This table of iron products, dosages and general comments was developed by Dr. Raj Kasthuri, Hematologist and Director of the UNC Chapel Hill HHT Center to be a resource for HHT patients and physicians. As with any medical condition, an HHT patient s…
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Pumping Iron in HHT
Article – 2017This handout by Ronalee Robert, Registered Dietician at the St. Michael’s Hospital HHT Center in Toronto, Canada was developed for the Patient & Family Conference held in Orlando, Florida. It covers all of the pertinent topics relating to iron in…
MoreLow Iron Levels and Blood Clots in HHT
Article – 2017You probably know that people with HHT are often short of iron because of bleeding, particularly from the nose. Being short of iron is what makes you anemic. But how does this fit in with blood clots? The big message for people with HHT is that they…
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More Than A Nosebleed: Buddy’s Story
For years, no one could explain Buddy Pitts’ chronic nosebleeds. Raised as a self-described “military brat,” he received a range of hypotheses from Army doctors, who speculated that the bleeds could b…
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