What the HHT?
A blog for the HHT community
Front Page Announcements
Managing Stress and Emotional Hurdles in HHT (recorded)
Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hopkins University School of Medicine, discusses how to manage stress and emotional hurdles in HHT. Living with HHT often means coping with a host of unpredictable symptoms, including nosebleeds, anemia, fatigue, shortness of breath, headaches,…
Read MoreVirtual Meet-Up: New Cure HHT Resource Library (recorded)
On May 20, 2020, Nicole Schaefer, Director of Medical and Scientific Programs and Phyllis Loveland, Operations and Communications Manager took a look into all that the new Cure HHT Resource Library has to offer the HHT Community, both patients and health care providers. The Resource Library is bursting with hundreds of published scientific literature, fact…
Read MoreCure HHT Spring 2020 Newsletter: Now Available!
Virtual Meet-Up: COVID-19 “Mind Over Matter” (recorded)
On March 26, 2020, Sara Palmer, PhD, retired psychologist, Cure HHT President and author, along with Cure HHT Operations and Communications Manager Phyllis Loveland, addressed the stressors surrounding COVID-19, social distancing, isolation and the impact of “too much information”. Together, Dr. Palmer and Ms. Loveland provided reliable resources to lessen your fears, while keeping you…
Read MoreStanford News Center: Patient Spotlight – Jennifer Cook and Nina Murphy-Cook
March 9, 2020 | Stanford Medicine |by Tracie White – “Jennifer Cook has dealt with migraine headaches and nosebleeds since she was in junior high school, but it wasn’t until much later in life, after two small strokes in her 40s, that she discovered these seemingly disconnected ailments — including strange, little red dots on…
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