What the HHT?
A blog for the HHT community
Front Page Announcements
NARRATE Study: Rare Disease Survey
The Children’s Hospital of Philadelphia is conducting a research study aimed at identifying needs among communities affected by rare disease with hopes of bridging existing communication gaps between rare disease patients, families, and physicians. Adult parents and patients living with rare diseases are invited to participate in an online survey.
Read MoreCure HHT Participates in PHA’s Associated Conditions Summit
Individuals with HHT have a greater risk of developing pulmonary hypertension. Statistically, 15-20% of HHT patients have PH. In November 2021, Cure HHT participated in the The Pulmonary Hypertension Association (PHA) Associated Conditions Partner Summit to explore ways to improve the understanding of PH and reduce barriers to diagnosis among at-risk groups, including those with…
Read MoreHHT on the TODAY Show: “Mommy I love you. My head hurts.”
Alexis was diagnosed with HHT at the age of 2 1/2 and underwent routine screenings at her local HHT Center of Excellence. Her life changed in an instant when she was rushed to the emergency room. The last thing she said to her mother before her life completely changed was, “Mommy I love you. My…
Read MoreBedside to Bench: How the HHT Community Drives Research Initiatives (Recorded)
In January of this year, over 1,200 HHT patients, caregivers, clinicians and researchers responded to surveys about their thoughts on all things HHT. Now, the results are in! Learn how Cure HHT is using the information provided from these survey findings to determine research funding priorities and build an HHT Research Roadmap that will help…
Read MoreShop for a cause. Shop for a cure. Shop Cure HHT!
Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in time for the holidays! Shop from an assortment of items including t-shirts, notepads and masks. And the best part, 100% of the proceeds go to…
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