What the HHT?
A blog for the HHT community
Cure HHT Announcements
WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en español es brindar conocimientos generales sobre la HHT de manera comprensible y útil para pacientes, familias y personal de salud. Este GRATUITO webinar se presentará íntegramente en español. Si no puede asistir al seminario web a la hora programada, aún…
Read More“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!
We’ve taken the Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Guide to Managing Your HHT. We are extremely proud to be able to provide this booklet to our HHT community.…
Read MoreACT NOW! HHT Federal Funding in Jeopardy!
Over the past few years, our HHT researchers have received significant funding for “Vascular Malformations,” a serious manifestation of HHT, through the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). We recently learned that VM’s were inadvertently left OUT of the PRMRP for 2021. Your help is urgently needed in getting VM’s back…
Read MoreMagic in the Making: Finding a Cure for HHT
Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m. (EST) Cure HHT proudly presents “Magic in the Making – Finding a Cure for HHT.” This magical night to support patients with HHT begins with an Amateur Hour of magic, joke-telling and fun featuring participants from our very own HHT…
Read MoreThe HHT Clinical Guidelines Are Here!
The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical decisions related to HHT diagnosis, screening, treatment and overall patient care management. These guidelines are used to set the standard of care to be used internationally for the diagnosis and treatment of HHT. Here you will find the most up-to-date…
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