What the HHT?
A blog for the HHT community
Cure HHT Announcements
NEW Research Surveys Available!
The Cure HHT Research Network (“CHRN”) is an HHT patient-led research network that encourages the sharing of ideas among patients, scientists, and physicians. The CHRN aims to bring safe, effective treatments to patients more quickly by prioritizing research based on patient needs, broadening the HHT scientific community, and encouraging global collaboration. Your participation in invaluable!
Read MoreNorth American Standard of Care for the Screening of Brain & Lung VMs
There is always excitement associated with the publication of one of our important research studies as it provides significant information for patients and their providers in managing care. This study, recently published in Vascular Medicine, focuses on screening practices for pulmonary (PAVMs) and vascular malformations (VMs). Cure HHT is able to provide FREE access to…
Read MoreVirtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information surrounding COVID-19 and HHT from leading experts who have been on the frontlines since the very beginning of the COVID-19 pandemic. This interdisciplinary group of experts from across our HHT North American Centers of Excellence will discuss the multiple aspects…
Read MoreWEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en español es brindar conocimientos generales sobre la HHT de manera comprensible y útil para pacientes, familias y personal de salud. Este GRATUITO webinar se presentará íntegramente en español. Si no puede asistir al seminario web a la hora programada, aún…
Read More“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!
We’ve taken the Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Guide to Managing Your HHT. We are extremely proud to be able to provide this booklet to our HHT community.…
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