What the HHT?

A blog for the HHT community

Children

Little Eleanor’s First Center Visit

Wow! What a week it has been! We just got back to Kansas from our trip to the Washington University HHT Center to have our daughter screened for cerebral AVMs. A reminder for my friends and family who are reading along – an AVM is an arteriovenous malformation that can occur in the organs of patients…

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Here We Go Again: Follow-Up for a HHT Patient

I’m starting all over again with the poking and the long needles, and the fasting before blood work is taken, and the MRAs, MRIs and CTs with and without contrast, and so on and so on and so on… Unfortunately, this is the life of a person who deals with HHT. Regardless of how I…

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