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What the HHT?

A blog for the HHT community

Recording Available: Empowering Patient Stories

Facebook Live: Empowering Patient Stories Thurs., June 19th  |  1:00 p.m. (ET) Join us for an inspiring and informative webinar, “Empowering Patient Stories,” on June 19 at 1:00 PM ET. This session is designed to equip you with the tools and confidence to share your unique HHT journey effectively. We are honored to feature Jessica…

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Cozy Games for a Cure

Cozy Games for a Cure Sat., June 21, 2025 | 10am CST Gaming streamer consolecaito will be hosting a charity stream supporting Cure HHT on June 21 at 10am CST! More details about giveaways, watch links, and more will be released shortly.

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Blood Drive: Boston

Blood Drive: Boston June 19-20, 2025 Calling on Boston! Our Director of Research, Cassi Friday, is organizing a local blood drive in Boston from June 19-20. Interested in donating? Fill out this form: https://curehht.qualtrics.com/jfe/form/SV_9GDuLOZR8QoM0PI Why: To better understand HHT and develop therapies, we need human tissues to study. The lack of available blood samples and…

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Webinar: Mental Health & HHT

Webinar: Mental Health & HHT Tues., June 24th  |  12:00 p.m. (ET) Living with Hereditary Hemorrhagic Telangiectasia (HHT) presents unique physical challenges, and this webinar will address the often-overlooked impact on mental well-being. Join us for a supportive discussion exploring the emotional aspects of managing a chronic condition like HHT. Our expert speaker Abbey J.…

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