What the HHT?
A blog for the HHT community
Posts by Riley Blevins
Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information surrounding COVID-19 and HHT from leading experts who have been on the frontlines since the very beginning of the COVID-19 pandemic. This interdisciplinary group of experts from across our HHT North American Centers of Excellence will discuss the multiple aspects…
Read MoreWEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en español es brindar conocimientos generales sobre la HHT de manera comprensible y útil para pacientes, familias y personal de salud. Este GRATUITO webinar se presentará íntegramente en español. Si no puede asistir al seminario web a la hora programada, aún…
Read MoreCure HHT Actualizaciones Oficiales de Salud: Coronavirus Disease (CV)
“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!
We’ve taken the Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Guide to Managing Your HHT. We are extremely proud to be able to provide this booklet to our HHT community.…
Read MoreA Tale of Two Sisters (Part 2)
My name is Hope and I’m 8 ½ years old. My sister has had nosebleeds ever since I can remember. Sometimes she has a nosebleed in the middle of playing. Blood can drip on our Legos and we have to stop. I feel really sad when Lily’s having her nosebleeds because I really like playing…
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