What the HHT?
A blog for the HHT community
Posts by Riley Blevins
Hopkins Patient Survey: How Does HHT Affect You?
The HHT Center of Excellence at Johns Hopkins School of Medicine invites you to participate in a research survey related to how symptoms of HHT have impacted you in your daily life.
This is a Cure HHT-funded research grant and participation will help make advancements in the clinical treatment of HHT, and better understand how the disease affects patients’ physical, emotional, and mental health.
Read More14th HHT Scientific Conference: Abstract Submission Deadline Extended!
The HHT International Scientific Conference is hosted and sponsored by Cure HHT. The Conference Organizing Committee invites authors to submit abstracts to be considered for inclusion in the 14th HHT International Scientific Conference for either oral or poster presentations. The abstract submission deadline has been extended to June 15, 2022. While Cure HHT will continue to…
Read MoreFederal Funding Secured for U.S. Centers of Excellence
A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that I share this truly momentous news with you: Our HHT Center of Excellence (CoE) funding request made it into the final spending bill, and that bill was signed into law by President Biden just a few weeks ago. At long…
Read MoreCure HHT Scientific Newsletter
Twice a year, Cure HHT collaborates with its global research and medical advisory board to publish HHT Frontlines – a scientific newsletter aimed at centralizing, summarizing, and sharing the most relevant HHT studies with the scientific and medical community. Our latest edition dropped earlier this year, and while the newsletter focuses on topics most relevant…
Read MoreCHRN: Creating a Roadmap for the Future
A Message from Marianne Clancy, Cure HHT Executive Director Transformational. That’s the word that keeps coming to mind since returning from Boston, the site of the 1st Cure HHT Research Network (CHRN) International Convening. I have been part of this foundation for nearly 30 years, and I can honestly say that this stands out as…
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