What the HHT?
A blog for the HHT community
Posts by Riley Blevins
Meta: Accelerating Research on Rare Diseases
March 19, 2021 | Meta | By Jennifer L. Minnick “At a recent workshop about Meta, Executive Director of Cure HHT Marianne Clancy noticed a new scientific paper about the rare disease she’s focused on curing — in the form of a case report from Sudan. Hereditary Hemorrhagic Telangiectasia, or HHT, is a genetic disorder that causes…
Read MoreFriends Virtual Trivia
Do the names Monica, Chandler, Ross, Rachel, Joey and Phoebe ring a bell? Then don’t miss Charm City’s “Friends” themed Trivia Night. Charm City is hosting their weekly Sunday Trivia Night for charity on April 11th, 2021 @ 8:00 pm (EDT) to benefit Cure HHT. Tickets are $15.00 and a portion of all proceeds will…
Read MoreLas Guías Internacionales de HHT: Anemia (Recorded)
Las Guías Internacionales de HHT Anemia 27 de Marzo | 9:00 a.m. (ET) (10 a.m. Argentina) El Dr. Marcelo Serra, médico internista y Director de la Unidad HHT, Hospital Italiano de Buenos Aires (Centro de Referencia) y la Dra. Yesica Lijdens (Otorrinolaringologa de la Unidad HHT Hospital Italiano de Buenos Aires) nos brindarán información sobre…
Read MoreLet’s Play! Virtual Trivia
Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this is the event for you! Join Cure HHT and Charm City Trivia on Thursday, March 25th for an entertaining night where everyone knows something about everything. Come together for a fast-paced fun game of trivia featuring music, sports, entertainment and…
Read MoreInternational HHT Guidelines: GI Bleeding Management (Recorded)
International HHT Guidelines Webinar Series Dr. Murali Chakinala, Co-Director, Washington University HHT Center of Excellence and Dr. Vivek Iyer, Director, Mayo Clinic HHT Center of Excellence as they discuss how to recognize the signs and symptoms of GI bleeding in HHT. Drs. Chakinala and Iyer will further dissect this subject area by taking the audience…
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