What the HHT?
A blog for the HHT community
Posts by Riley Blevins
1st CHRN Conference Convening
The 1st Cure HHT Research Network International Convening is just around the corner and taking place in Boston from March 18-20! Our HHT patient advocates, leading physicians and scientists from around the globe have our community’s survey data in hand. Following virtual workshop sessions, this amazing group will be working side-by-side to develop a research roadmap that prioritizes HHT…
Read MoreHHT Frontlines: Spring 2022 Flipbook
Support HHT Centers of Excellence through HRSA!
We made it through the House, but now we need final Senate support! Thanks to your recent advocacy, in July 2021 the U.S. House of Representatives approved legislation that included $2 million in funding that would go directly to a new “National HHT Diagnosis and Treatment Initiative,” providing funds to our existing CoEs to expand staffing and…
Read MoreFB Live Event: Dr. Scott Olitsky – Are Clinical Trials Right for Me?
Join Cure HHT Chief Medical Officer, Scott Olitsky, MD for a Facebook live event as he discuss the components of a typical clinical trial, why they are necessary, and how they can lead to approved therapies. For many years there were few treatments for HHT and those that were available tended to address the problems…
Read MoreHelp KISS HHT goodbye!
February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Kisses for a Cure tribute celebration from February 14 through February 28 (Rare Disease Day®), for each donation made (no matter the amount), we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their…
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