What the HHT?
A blog for the HHT community
Posts by Ashley Watkins
Physician Webinar: The Role of Liver Imaging in HHT (Recorded)
Liver involvement occurs in approximately 75% of people with HHT. While many people are asymptomatic, the complications associated with liver involvement have historically been under diagnosed. These complications include arterioportal shunting leading to portal hypertension and arteriosystemic shunting leading to high output cardiac failure (HOCF). HOCF occurs much more frequently than has previously been considered.…
Read MoreWFMZ-TV 69 News reports on HHT-HTC Openings
There’s nothing we relish more than seeing news coverage about HHT. We were so excited to have WFMZ-TV Channel 69 report on our two newest HHT-HTC Treatment Centers that opened in Indiana and Michigan! Not only did the reporting share the good news about access to care but gave an overview of HHT and its…
Read MoreCDC Features HHT in Popular Webinar Series
One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how frustrating this can be. That’s why we continue to make physician education a priority. For years, Cure HHT has attempted to get on the Centers…
Read MoreRegister Now! CDC Webinar Series on Blood Disorders features HHT
Hereditary Hemorrhagic Telangiectasia in 2021: Diagnosis and Advances in Treatment August 19, 2021 | 2:00-3:00 PM (ET)
Read MoreUltraTri for HHT
Dr. Anthony Anzell, Cure HHT’s newest recipient of the Compassionate Champion award, Board Member, Researcher and HHT patient is gearing up for another one of his, as he likes to call it, “Crazy Events.” Anthony and five of his friends, have created their bigger version of the Ironman competition with an Ultra-Tri, taking place August…
Read More