What the HHT?
A blog for the HHT community
Posts by Ashley Watkins
Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast
Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare disease podcast, featuring Marianne Clancy – Executive Director at Cure HHT. Listen to the full episode on Wednesday 6/23, HHT Awareness Day! This FREE podcast will be available through the Biorasi website and on all major podcast streaming platforms including…
Read More30 Years Strong Highlights
With your support, Cure HHT has accomplished so much, and the best is yet to come! As we launch our 30th Anniversary Year, we look back at just a few of the many successes that donors like you have made possible! Together, we have built an amazing foundation – expanding expert clinical access, funding research,…
Read More30th Anniversary Celebration
Cure HHT’s 30th Anniversary kick-off is a virtual celebration was a huge success, with with presenters reflecting on the tremendous influence of the organization’s vision and future endeavors to find, treat and cure HHT over the past three decades. The event featured a Walk Down Memory Lane with some of our most influential supporters, a…
Read MoreInternational HHT Guidelines: Diagnosis of HHT
International HHT Guidelines Webinar Series Topic: Diagnosis of HHT Thur., June 24th | 7:00 p.m. (ET) Join Dr. Justin McWilliams, Co-Director, UCLA HHT Center of Excellence and Katie Wusik, Genetic Counselor for the Cincinnati Children’s Hospital HHT Center of Excellence as they discuss diagnosing HHT. Dr. McWilliams and Ms. Wusik will walk the audience through…
Read MoreInternational HHT Guidelines: Epistaxis/Nosebleed Management
International HHT Guidelines Webinar Series Topic: Epistaxis/Nosebleed Management Sat., June 12th | 12:00 p.m. (ET) Join Dr. Jay Piccirillo, ENT, Washington University HHT Center of Excellence and Dr. James Gossage, Director, Augusta University HHT Center of Excellence as they discuss the new International HHT Guidelines for Epistaxis (Nosebleed Management). Both doctors are renowned HHT specialist…
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