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What the HHT?

A blog for the HHT community

Hopkins Patient Survey: How Does HHT Affect You?

The HHT Center of Excellence at Johns Hopkins School of Medicine invites you to participate in a research survey related to how symptoms of HHT have impacted you in your daily life.

This is a Cure HHT-funded research grant and participation will help make advancements in the clinical treatment of HHT, and better understand how the disease affects patients’ physical, emotional, and mental health.

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Federal Funding Secured for U.S. Centers of Excellence

A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that I share this truly momentous news with you: Our HHT Center of Excellence (CoE) funding request made it into the final spending bill, and that bill was signed into law by President Biden just a few weeks ago. At long…

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