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What the HHT?

A blog for the HHT community

Lynne Sekarski, RN receives the Heroes in Action Award from the March of Dimes

In recognition of her tireless work with pediatric HHT patients at the Washington University School of Medicine HHT Center of Excellence, the March of Dimes organization presented Ms. Sekarski, HHT pediatric nurse and long-time CoE Coordinator, with this incredible honor for her years of dedicated service caring for children with HHT. She was nominated by the many grateful families she has worked with, along with colleagues and supervisors. We are so incredibly proud of the work Ms. Sekarski does for our HHT community. Congratulations!

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Giving Tuesday 2022

Giving Tuesday is the largest global day of generosity – where people around the world unite, encourage good, and support organizations that are near and dear to their hearts. It’s a meaningful day for us here at Cure HHT, as we couldn’t continue to push for progress without the generosity of our mighty and incredible community. You are the fuel that keeps us on the cutting edge of research and medicine! This #GivingTuesday, which is Tuesday, Nov. 29, we’ll be highlighting some of our standout young HHT scholars!

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Owning Our Future: Introducing Our New Therapeutic Development Arm

Our mission has remained the same since our founding: to find a cure… to create a future without the unnecessary suffering, without the pain and loss. While work remains to make that future a reality, we’re excited to introduce a monumental step we’re taking to bring that future forward faster.

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