Mental Health & HHT (Recorded)
Living with Hereditary Hemorrhagic Telangiectasia (HHT) presents unique physical challenges, and this webinar will address the often-overlooked impact on mental…
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Entering the Therapeutics Age: A New Era for HHT Treatment (Recorded)
Lately, there’s been an exciting wave of news about HHT therapies. Several clinical trials are now underway, biotech companies are investing heavily in HHT rese…
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A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded)
Join us to learn about sclerotherapy, an innovative treatment offering hope to HHT patients suffering from chronic nosebleeds. Dr. Jay Piccirillo, ENT at Washin…
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Stopping the Flow: A Comprehensive Guide to HHT Nosebleed Management (Recorded)
Join us as Dr. Jeb Justice, co-director of the HHT Center of Excellence at University of Florida, goes over a variety of ways you can help manage your HHT-relat…
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How to Be an HHT Changemaker Part 2: Educate Your Local Provider (Recorded)
YOU asked us to educate the medical community on HHT. Learn more about our new HHT Continuing Education Credit Online Platform in Part 2 of our “How to Be an HH…
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How to Be an HHT Changemaker Part 1: Drive Research (Recorded)
Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBan…
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NEW Criteria! Groundbreaking Trial for HHT: Learn About Pazopanib (Recorded)
Your questions answered about our newest clinical trial with NEW expanded criteria! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is now eligib…
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Caring for HHT Through the Generations (Recorded)
Drs. Adrienne Hammill, Center Director at Cincinnati Children’s Hospital and Kevin Whitehead, Center Director at University of Utah. Dr. Hammill guides you thro…
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Pazopanib: A Groundbreaking Trial for HHT (Recording)
Get your questions answered about our newest clinical trial! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is eligible, what Pazopanib is and h…
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Uncovering Your Roots: Decoding Genetic Testing
Discover the power of genetic testing as we uncover the roots of HHT! Join us for an enlightening online education opportunity with Theodore Drivas, MD, PhD, Un…
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Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods
Calling all foodies! Grab your apron and head to the kitchen to join Registered Dietitian Nutritionist Kat Benson for our most sizzling online education opportu…
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Research Roundtable: An Inside Look at Exciting Clinical Trials
Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Fau…
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PH and HHT: Signs, Symptoms and Disease Management (Recorded)
PHA and Cure HHT – Murali M. Chakinala, M.D. discusses the importance of recognizing the signs and symptoms of Pulmonary Hypertension (PH) and Hereditary Hemorr…
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Bedside to Bench: How the HHT Community Drives Research Initiatives (Recorded)
In March 2020, Cure HHT was 1 of 30 organizations selected to participate in the Chan Zuckerberg Initiative (also known as CZI) Rare is One Project. This ambiti…
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Las Guías Internacionales de HHT: Epistaxis – Tratamiento Farmacológico (Grabado)
El Dr. Marcelo Serra, Director de la Unidad de HHT del Hospital Italiano de Buenos Aires brinda información sobre el tratamiento farmacológico no quirúrgico del…
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HHT International Guidelines: Brain Vascular Malformations (VMs) (Recorded)
Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence, discusses Brain Vascular Malformations (VMs) as they relate to HHT. Dr. Faughnan is a renowned H…
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Physician Webinar: The Role of Liver Imaging in HHT (Recorded)
Liver involvement occurs in approximately 75% of people with HHT. While many people are asymptomatic, the complications associated with liver involvement have h…
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International HHT Guidelines: Diagnosis
Dr. Justin McWilliams, Co-Director, UCLA HHT Center of Excellence and Katie Wusik, Genetic Counselor for the Cincinnati Children’s Hospital HHT Center of Excell…
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International HHT Guidelines: Epistaxis/Nosebleed Management (Recorded)
Dr. Jay Piccirillo, ENT, Washington University HHT Center of Excellence and Dr. James Gossage, Director, Augusta University HHT Center of Excellence discuss the…
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Las Guías Internacionales de HHT: Epistaxis en HHT (Grabado)
La Dra. Yesica Lijdens, Otorrinolaringóloga de la Unidad HHT Hospital Italiano de Buenos Aires, y el Dr. Federico Urquiola, Otorrinolaringólogo y Coordinador OR…
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International HHT Guidelines: Liver Vascular Malformations (Recorded)
Dr. Kevin Whitehead, Co-Director, University of Utah HHT Center of Excellence and Dr. Josanna Rodriguez-Lopez, Director, Massachusetts General Hospital HHT Cent…
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International HHT Guidelines: Pulmonary AVMs (Recorded)
Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical…
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International HHT Guidelines: Pregnancy and Women’s Issues (Recorded)
Dr. Andrea Lausman, Maternal Fetal Medicine Specialist, and Dr. Filomena Meffe, Chief, Department of Obstetrics and Gynecology, at the Toronto HHT Centre of Exc…
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Nuts and Bolts of A Clinical Trial – the PATH-HHT Study (Recorded)
Research is the key to the future health and quality of life for HHT patients. “Diseases can only be cured when scientists understand them. This understanding,…
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International HHT Guidelines: Pediatrics (Recorded)
Dr. Andrew White, Co-Director, Washington University / St. Louis Children’s Hospital HHT Center of Excellence and Dr. Adrienne Hammill, Director, Cincinnati Chi…
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Las Guías Internacionales de HHT: Anemia (Recorded)
El Dr. Marcelo Serra, Internista y Director de la Unidad de HHT, Hospital Italiano de Buenos Aires y la Dra. Yesica Lijdens, Otorrinolaringóloga del HHT Hospita…
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International HHT Guidelines: GI Bleeding Management
Dr. Murali Chakinala, Co-Director, Washington University HHT Center of Excellence and Dr. Vivek Iyer, Director, Mayo Clinic HHT Center of Excellence as they dis…
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International HHT Guidelines: Anemia (Recorded)
Dr. Raj Kasthuri, Director, UNC Chapel Hill HHT Center of Excellence and Dr. Hanny Al-Samkari, Associate Director, Massachusetts General Hospital HHT Center of…
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International HHT Guidelines – Overview (Recorded)
Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they a…
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NIH & Genetic Alliance – Coronavirus Vaccines (Recorded)
“Francis Collins, Director of the National Institutes of Health, shares with us why it is critical that individuals living with chronic diseases and conditions…
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