WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr. Marcelo Serra, especialista en Medicina Interna y Director de la Unidad de HHT d…
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Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
A rare opportunity to receive factual information surrounding COVID-19 and HHT from leading HHT experts who have been on the frontlines since the very beginning…
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Ask The Doctor: Tackling Anemia and Iron Deficiency (Recorded)
Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT induced anemia and iron deficiency. With anemia affecting 50% of people diagnosed w…
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Virtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded)
Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and HHT patient, Chelsea McBride as they discuss EVERYTHING nosebleed…
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Ask the Doctor: HHT and Pulmonary Hypertension (recorded)
Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver Programs at the Pulmonary Hypertension Association, disc…
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Managing Stress and Emotional Hurdles in HHT (recorded)
Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hop…
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Navigating the NEW Resource Library (recorded)
On May 20, 2020, Nicole Schaefer, Director of Medical and Scientific Programs and Phyllis Loveland, Operations and Communications Manager took a look into all t…
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COVID-19: Mind over Matter (recorded)
Connect with Dr. Sara Palmer and Cure HHT staff member, Phyllis Loveland, Operations and Communications Manager, as they help you mentally navigate these challe…
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The Science Behind the 2019 Scientific Conference (recorded)
Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference i…
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Living with HHT (recorded)
Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships….
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Webinar: Getting to Know Backpack Health – Live App Demo (recorded)
With 1 in 5000 people suffering from HHT, which presents with a multitude of symptoms, having a tool like Backpack Health is crucial to managing your health nee…
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HHT Lung AVMs – A Tangled Web (recorded)
Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangle…
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IVF and Preimplantation Genetic Testing for HHT (recorded)
Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you…
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Anemia and Iron Deficiency in HHT (recorded)
Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. Dr. Adrienne Hammil…
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Screening & Treatment of Brain AVMs in HHT (recorded)
Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) repr…
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Eating for Health: Dietary Choices that Impact Bleeding
Ever wonder if certain foods trigger nosebleeds? Lisa Mannik, Registered Dietitian in the division of respirology at St. Michael’s Hospital HHT Centre in Toront…
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My HHT Tracker (recorded)
Peter Lauwers, lead member of the Arbormoon Software, Inc. development team, walks through all of the features of this FREE new iOS App for HHT patients. My HHT…
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Genetics: Unraveling Your DNA (recorded)
Jaime Jessen, BSc, MSc, CGC, Certified Genetic Counselor and Medical Science Liaison at Impact Genetics and LabCorp, provides an informative presentation on the…
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HHT Overview and Screening Guidelines (recorded)
Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HH…
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Making the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)
Cure HHT Legislative Advisor Mark Vieth takes us for a behind-the-scene look at how Cure HHT can impact federal research funding and awareness of this disease….
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HHT Scientific Conference Summaries (recorded)
Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard fr…
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#OnMyOwn (recorded)
Dr. James Gossage, Director of the Pulmonary Vascular Disease Program and HHT Center of Excellence at Augusta University, and Dr. Sara Palmer, psychologist and…
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HHT: Caring for the Younger Generation (recorded)
Lynne Sekarski, MSN, RN, CPN, nurse coordinator for the St. Louis Children’s Hospital HHT Center of Excellence at Washington University, provides an in-depth co…
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Ask the Doctor
Dr. James Gossage, Director of the Pulmonary Vascular Disease program and the HHT Center of Excellence at Augusta University, answers questions about HHT screen…
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What’s the Skinny on HHT? (recorded)
Dr. Richard Antaya, Professor of Dermatology and Pediatrics and Director of Pediatric Dermatology at Yale University HHT Center of Excellence, explores what’s h…
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Pumping Iron in HHT (recorded)
The multi-disciplinary team of experts from the HHT Center of Excellence at the University of Toronto/St. Michael’s Hospital discuss the causes and impact of ir…
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Pulmonary Hypertension and HHT (recorded)
Dr. Murali Chakinala, Co-Director of the Washington University HHT Center of Excellence, connects the dots between HHT and Pulmonary Hypertension. He discusses…
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Let’s Get Personal – HHT in Women (recorded)
Dr. Els de Gussem, Director of the HHT Center of Excellence at Grace Hospital AMC in Winnipeg, Canada, takes an in-depth look at the effects of HHT on the chang…
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Nosebleed Management in HHT (recorded)
Dr. David Poetker, an Otolaryngologist at the Froedtert & Medical College of Wisconsin HHT Center of Excellence, discusses the full-spectrum of nosebleed th…
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What Does This All Mean to Me and My Family? (recorded)
Dr. Justin McWilliams, Co-Director of the HHT Center of Excellence at the University of California Los Angeles, highlights the recommended screening and treatme…
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