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Newly Diagnosed
Resources to guide newly diagnosed patients through initiating screening and treatment locally and at HHT Centers of Excellence.
Related Resources
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HHT International Clinical Guidelines (2009)
Guidelines – 2009Published by the Journal of Medical Genetics in 2009, the International Guidelines for the Diagnosis and Management of HHT (First “International Guidelines for the Diagnosis and Management of HHT”) is a comprehensive document to share with your physi…
MoreA Rare and Misdiagnosed Bleeding Disorder: Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2005Journal of Thrombosis and Haemostasis. Author: C. Sabba` This article is available for public use and does not require purchase. Click to view the full article.
MoreGenetics: HHT Overview
Scientific Literature – 2000Hereditary hemorrhagic telangiectasia (HHT) is characterized by the presence of multiple arteriovenous malformations (AVMs) that lack intervening capillaries and result in direct connections between arteries and veins. The most common clinical manife…
MoreGenetics: HHT Overview
Scientific Literature – 2000GeneReviews. Authors: Jamie McDonald, MS, CGC and Reed E Pyeritz, MD, PhD, FACMG. This article is available for public use and does not require purchase. Click to view the full article.
MoreRelated News
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HHT Kids Day – San Francisco
Do you live near San Francisco? We have an event for you! HHT Kids Day, co-hosted by UCSF HHT Center of Excellence and Cure HHT at the California Academy of Sciences Museum promises to be an amazing d…
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A Monumental $128 Million Step Forward for HHT Research
April 3, 2024![](https://curehht.org/wp-content/uploads/2024/03/HHT-CME-graphic-1-wpv_150x100_center_center.jpg)
HHT Continuing Education Program for medical professionals
March 22, 2024![](https://curehht.org/wp-content/uploads/2024/03/IMG_3674_cropped-scaled-wpv_150x100_center_center.jpg)
Cure HHT Takes on Capitol Hill
March 16, 2024![](https://curehht.org/wp-content/uploads/2024/02/SciCon-15_Logo-France-rectangle-wpv_150x100_center_center.jpg)
15th HHT International Scientific Conference
March 1, 2024![](https://curehht.org/wp-content/uploads/2022/02/Kisses-for-a-Cure-web-post-image2-1-wpv_150x100_center_center.jpg)