Mental Health
Living with a chronic illness such as HHT can feel isolating, and affect physical and emotional well-being.
Related Resources
How to Be an HHT Changemaker Part 1: Drive Research
Webinar – 2024Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Co…
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HHT Family Ambassadors & Communicating with Family
Video – 2023FB Live Event – Join Sara Palmer, PhD, author of Living with HHT, and Riley Blevins of Cure HHT as they navigate discussing HHT with family members and the importance of being a family ambassador during HHT Awareness Month in June. Click image below…
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Research Roundtable: An Inside Look at Exciting Clinical Trials
Webinar – 2023Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial…
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My HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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Managing Stress and Emotional Hurdles in HHT (recorded)
Webinar – 2020Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hopkins University School of Medicine, discusses how to manage stress and emotional hurdles i…
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COVID-19: Mind over Matter (recorded)
Webinar – 2020Connect with Dr. Sara Palmer and Cure HHT staff member, Phyllis Loveland, Operations and Communications Manager, as they help you mentally navigate these challenging times of COVID-19 coupled with HHT. Join Dr. Palmer as she addresses the stressors s…
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Living with HHT (recorded)
Webinar – 2020Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships. In addition, learn coping skills that can help you live better with HHT, get tips on how t…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Depression and Post-Traumatic Stress Disorder in Individuals with HHT
Scientific Literature – 2017Thrombosis Research. Authors: Shruti Chaturvedi, Marianne Clancy, Nicole Schaefer, Olalekan Oluwole, and Keith R. McCrae. This article is available for public use and does not require purchase. Click to view the full article.
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HHT & Depression
Fact Sheet – 2016The stress of living with a genetic disease can lead to depression. Learn how to recognize the signs and symptoms.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
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HHT Kids Day – San Francisco
Do you live near San Francisco? We have an event for you! HHT Kids Day, co-hosted by UCSF HHT Center of Excellence and Cure HHT at the California Academy of Sciences Museum promises to be an amazing d…
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June Awareness – Be an HHT Changemaker!
June 1, 2024
A Monumental $128 Million Step Forward for HHT Research
April 3, 2024
HHT Continuing Education Program for medical professionals
March 22, 2024