Latest News

Announcements, Blog Posts, News Articles

Strides for Strength: Virtual Walk

May 10, 2021

Our 2nd Annual Global Walk for a Cure—Strides for Strength—is back for another exciting year and we are doing things BIGGER and BETTER than before! Grab your walking shoes, round…

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PATH_Logo

PATH – Now Recruiting!

April 27, 2021

The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at 11 research centers across the United States. Find centers…

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Let’s Play! Virtual Trivia

March 9, 2021

Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this is the event for you! Join Cure HHT and Charm City Trivia on Thursday, March…

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Talk Circle: Living With HHT Virtual Book Club Event

February 9, 2021

Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m. (EST) (Final Night of the Winter Series) It’s the three year anniversary of the publication…

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Cure HHT Research Network: Clinician and Scientist Surveys

January 29, 2021

The Cure HHT Research Network has put together surveys for our medical and basic science communities that will help us to identify research priorities in HHT. Launched in early 2020,…

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A WIN on Capitol Hill for HHT!

January 28, 2021

You may recall that back in November 2020, Cure HHT reached out for help to urge the Senate to correct an oversight related to the Department of Defense’s (DoD) Peer Reviewed…

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Marianne Clancy Interview on Fox 45 News Baltimore

June 21, 2018

Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45…

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Why Was This Teenager Bleeding So Excessively?

March 13, 2018

The New York Times Magazine | 2018

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Charlie Druken was ‘living the dream’ at NHL oldtimers game

December 18, 2017

The Telegram | 2017

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Tulane receives $1.7 million grant from Department of Defense for blood vessel research

November 14, 2017

Tulane News | 2017

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Man swims across Torch Lake for HHT Awareness

August 30, 2017

Fox 2 | 2017

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Rep. David Price accepts award for HHT funding

August 24, 2017

The Daily Tar Heel | 2017

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Afraid of Spiders? When Telangiectasia is More than just Spider Veins

August 1, 2017

La Jolla Light | 2017

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Dan Siani’s legacy grows with fight against HHT, disease that took his life

September 13, 2016

Staten Island Live | 2016

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