Cure HHT Participates in PHA’s Associated Conditions Summit
Individuals with HHT have a greater risk of developing pulmonary hypertension. Statistically, 15-20% of HHT patients have PH. In November 2021, Cure HHT participated in the The Pulmonary Hypertension Association…
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FREE Genetic Testing for Rare Diseases
The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected rare disease who do not have a genetic…
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PATH Clinical Trial – Now Recruiting!
The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at up to 11 research centers across the United States.…
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Shop for a cause. Shop for a cure. Shop Cure HHT!
Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in…
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CDC Features HHT in Popular Webinar Series
One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how…
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Barrow Neurological Institute named new HHT Center of Excellence
Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of…
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Chair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT
Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a…
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Living with HHT: Review in Journal of Radiology Nursing
Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from…
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Marianne Clancy Interview on Fox 45 News Baltimore
Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45…
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