Singapore General Hospital Certified as HHT International Treatment Center
Increasing access to specialized care is an important part of Cure HHT’s mission. We’ve made significant progress in the last 30+ years, but work remains to realize a future where every patient has access to expert care. This gap in care is particularly present for many in our international community, which is why we’re unveiling a new “International Treatment Center” program aimed at increasing the number of knowledgeable physicians and care teams around the globe…
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PATH Clinical Trial – Now Recruiting!
The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at several research centers across the United States. Find centers and check your eligibility…
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KISS HHT goodbye this February!
February is Rare Disease Month and once again, you can honor someone special to you who is affected by HHT, by participating in our Kisses for a Cure tribute celebration from February 14 through February 28 (Rare Disease Day®)!
For each donation made (no matter the amount), we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their battle to the disease, by collecting hearts and KISSES…
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Thank You for an Amazing Year
We want to extend a heartfelt thank you as we celebrate an amazing year of community and progress in 2022. Watch a year in review here.
If you’d like to learn more about the cutting edge developments happening in HHT science and research, click here.
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NEW! Text to Give
You can now support Cure HHT this holiday season via text! As an added bonus, when you make a donation through your mobile device, you can choose to receive future HHT news and updates directly to your phone. Message & data rates may apply. Donate today to have your gift DOUBLED by a generous group of donors. To give, text “donate” to (410) 237-0199.
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Giving Tuesday 2022
Giving Tuesday is the largest global day of generosity – where people around the world unite, encourage good, and support organizations that are near and dear to their hearts. It’s a meaningful day for us here at Cure HHT, as we couldn’t continue to push for progress without the generosity of our mighty and incredible community. You are the fuel that keeps us on the cutting edge of research and medicine! This #GivingTuesday, which is Tuesday, Nov. 29, we’ll be highlighting some of our standout young HHT scholars!
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HHT in the News – Wisconsin
KENOSHA — For most of his life, Mark Schnuck has had nosebleeds. Some have been minor, others severe, but…
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Rainbow Rehab’s Rainbow Visions Magazine: Coming Full Circle
Much of HHT education comes from the deeply personal stories of those who are living with the disorder. This…
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Washington Post Feature: Zina Martinez Story
The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about…
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Chair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT
Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a…
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Living with HHT: Review in Journal of Radiology Nursing
Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from…
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Marianne Clancy Interview on Fox 45 News Baltimore
Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45…
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