Latest News

Announcements, Blog Posts, News Articles

Cure HHT Participates in PHA’s Associated Conditions Summit

January 4, 2022

Individuals with HHT have a greater risk of developing pulmonary hypertension. Statistically, 15-20% of HHT patients have PH. In November 2021, Cure HHT participated in the The Pulmonary Hypertension Association…

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FREE Genetic Testing for Rare Diseases

November 10, 2021

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected rare disease who do not have a genetic…

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PATH Clinical Trial – Now Recruiting!

November 10, 2021

The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at up to 11 research centers across the United States.…

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Shop for a cause. Shop for a cure. Shop Cure HHT! 

October 20, 2021

Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in…

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CDC Features HHT in Popular Webinar Series

August 6, 2021

One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how…

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Barrow Neurological Institute named new HHT Center of Excellence

June 30, 2021

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of…

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Chair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT

June 29, 2018

Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a…

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Living with HHT: Review in Journal of Radiology Nursing

June 21, 2018

Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from…

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Marianne Clancy Interview on Fox 45 News Baltimore

June 21, 2018

Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45…

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Why Was This Teenager Bleeding So Excessively?

March 13, 2018

The New York Times Magazine | 2018

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Charlie Druken was ‘living the dream’ at NHL oldtimers game

December 18, 2017

The Telegram | 2017

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Tulane receives $1.7 million grant from Department of Defense for blood vessel research

November 14, 2017

Tulane News | 2017

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Man swims across Torch Lake for HHT Awareness

August 30, 2017

Fox 2 | 2017

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Rep. David Price accepts award for HHT funding

August 24, 2017

The Daily Tar Heel | 2017

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