Latest News

Announcements, Blog Posts, News Articles

CDC Features HHT in Popular Webinar Series

August 6, 2021

One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how…

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Barrow Neurological Institute named new HHT Center of Excellence

June 30, 2021

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of…

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Cure HHT Spring 2021 Newsletter: Now Available!

June 28, 2021

Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as a pdf or Flipbook.

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New HHT-HTC Treatment Centers

June 23, 2021

Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine Hemophilia and Coagulation Disorders Program, as well as the Indiana Hemophilia & Thrombosis Center, Hemophilia…

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Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

June 16, 2021

Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare disease podcast, featuring Marianne Clancy – Executive Director at Cure HHT. Listen to the full…

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30 Years Strong Highlights

June 8, 2021

With your support, Cure HHT has accomplished so much, and the best is yet to come! As we launch our 30th Anniversary Year, we look back at just a few…

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Living with HHT: Review in Journal of Radiology Nursing

June 21, 2018

Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from…

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Marianne Clancy Interview on Fox 45 News Baltimore

June 21, 2018

Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45…

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Why Was This Teenager Bleeding So Excessively?

March 13, 2018

The New York Times Magazine | 2018

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Charlie Druken was ‘living the dream’ at NHL oldtimers game

December 18, 2017

The Telegram | 2017

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Tulane receives $1.7 million grant from Department of Defense for blood vessel research

November 14, 2017

Tulane News | 2017

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Man swims across Torch Lake for HHT Awareness

August 30, 2017

Fox 2 | 2017

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Rep. David Price accepts award for HHT funding

August 24, 2017

The Daily Tar Heel | 2017

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Afraid of Spiders? When Telangiectasia is More than just Spider Veins

August 1, 2017

La Jolla Light | 2017

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