Talk Circle: Living With HHT Virtual Book Club Event
Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m. (EST) (Final Night of the Winter Series) It’s the three year anniversary of the publication…
Read More
PATH – Now Recruiting!
The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at 11 research centers across the United States. Find centers…
Read More
Cure HHT Research Network: Clinician and Scientist Surveys
The Cure HHT Research Network has put together surveys for our medical and basic science communities that will help us to identify research priorities in HHT. Launched in early 2020,…
Read More
A WIN on Capitol Hill for HHT!
You may recall that back in November 2020, Cure HHT reached out for help to urge the Senate to correct an oversight related to the Department of Defense’s (DoD) Peer Reviewed…
Read More
Beta Testers Needed for AnemoCheck Mobile App
Cure HHT and Sanguina have been working together to beta test a new smart phone app that will allow users to check their hemoglobin anytime with their smartphone. We previously…
Read More
NEW Research Surveys Available!
The Cure HHT Research Network (“CHRN”) is an HHT patient-led research network that encourages the sharing of ideas among patients, scientists, and physicians. The CHRN aims to bring safe, effective…
Read More
Afraid of Spiders? When Telangiectasia is More than just Spider Veins
La Jolla Light | 2017
Read More
Dan Siani’s legacy grows with fight against HHT, disease that took his life
Staten Island Live | 2016
Read More