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Alder Hey Children’s Hospital Achieves Cure HHT Center of Excellence Designation

June 11, 2026

Newly recognized international treatment center expands access to expert, coordinated care for people living with HHT MONKTON, MD—Cure HHT is proud to announce that Alder Hey Children’s Hospital in Liverpool,…

Cure HHT Announces Historic Federal Research Designation for Hereditary Hemorrhagic Telangiectasia

May 26, 2026

New PRMRP designation creates a dedicated pathway for HHT-focused research through the Department of Defense’s Congressionally Directed Medical Research Programs MONKTON, MD. — May 19, 2026 — Cure HHT is…

State of HHT: An Update from Cure HHT’s CEO

May 21, 2026

Upcoming Event: State of HHT: An Update from Cure HHT’s CEO Tuesday, June 23  |  6:00-7:00pm ET   Join Cure HHT’s CEO for a comprehensive update on the state of…

University Hospitals of Leuven Achieves Cure HHT Center of Excellence Designation

May 20, 2026

Newly recognized international treatment center expands access to expert, coordinated care for people living with HHT MONKTON, MD—Cure HHT is proud to announce that University Hospitals of Leuven has been…

Town Hall: Cure HHT Centers of Excellence Program Updates

May 12, 2026

Upcoming Webinar: Town Hall: Cure HHT Center of Excellence Program Updates Tuesday, June 16  |  1:00-2:00pm ET   Cure HHT is committed to improving care, supporting providers, and helping ensure…

Facebook Live: AMA with Dr. Miles Conrad, UCSF

May 11, 2026

Upcoming Event: Facebook Live: AMA with Dr. Miles Conrad, UCSF Tuesday, June 2  |  7:00-8:00pm ET   This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options,…

Marianne Clancy Interview on Fox 45 News Baltimore

June 21, 2018

Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45…

Why Was This Teenager Bleeding So Excessively?

March 13, 2018

The New York Times Magazine | 2018

Charlie Druken was ‘living the dream’ at NHL oldtimers game

December 18, 2017

The Telegram | 2017

Tulane receives $1.7 million grant from Department of Defense for blood vessel research

November 14, 2017

Tulane News | 2017

Man swims across Torch Lake for HHT Awareness

August 30, 2017

Fox 2 | 2017

Rep. David Price accepts award for HHT funding

August 24, 2017

The Daily Tar Heel | 2017

Afraid of Spiders? When Telangiectasia is More than just Spider Veins

August 1, 2017

La Jolla Light | 2017

Dan Siani’s legacy grows with fight against HHT, disease that took his life

September 13, 2016

Staten Island Live | 2016

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