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Announcements, Blog Posts, News Articles

Cure HHT Participates in PHA’s Associated Conditions Summit

January 4, 2022

Individuals with HHT have a greater risk of developing pulmonary hypertension. Statistically, 15-20% of HHT patients have PH. In November 2021, Cure HHT participated in the The Pulmonary Hypertension Association…

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FREE Genetic Testing for Rare Diseases

November 10, 2021

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected rare disease who do not have a genetic…

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PATH Clinical Trial – Now Recruiting!

November 10, 2021

The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at up to 11 research centers across the United States.…

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Shop for a cause. Shop for a cure. Shop Cure HHT! 

October 20, 2021

Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in…

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CDC Features HHT in Popular Webinar Series

August 6, 2021

One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how…

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Barrow Neurological Institute named new HHT Center of Excellence

June 30, 2021

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of…

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Afraid of Spiders? When Telangiectasia is More than just Spider Veins

August 1, 2017

La Jolla Light | 2017

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Dan Siani’s legacy grows with fight against HHT, disease that took his life

September 13, 2016

Staten Island Live | 2016

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What is HHT and Might I have it?

June 1, 2016

The Scope | 2016

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Navigating Through Brain’s Vasculature: A Trip to UCSF’s Neuro Cath Lab

January 15, 2016

medGadget | 2016

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“Think Like a Doctor: The Quarterback’s Headache” (Part 2) by Lisa Sanders, M.D.

September 4, 2015

“[w]e challenged Well readers to take on the case of a 15-year-old boy with the worst headache of his…

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Quarterback

“Think Like a Doctor: The Quarterback’s Headache” (Part 1) by Lisa Sanders, M.D.

September 3, 2015

“The Challenge: Can you figure out what is giving this 15-year-old boy the worst headache of his life? Every month…

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