Latest News

Announcements, Blog Posts, News Articles

Talk Circle: Living With HHT Virtual Book Club Event

February 9, 2021

Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m. (EST) (Final Night of the Winter Series) It’s the three year anniversary of the publication…

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PATH – Now Recruiting!

February 1, 2021

The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at 11 research centers across the United States. Find centers…

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Cure HHT Research Network: Clinician and Scientist Surveys

January 29, 2021

The Cure HHT Research Network has put together surveys for our medical and basic science communities that will help us to identify research priorities in HHT. Launched in early 2020,…

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A WIN on Capitol Hill for HHT!

January 28, 2021

You may recall that back in November 2020, Cure HHT reached out for help to urge the Senate to correct an oversight related to the Department of Defense’s (DoD) Peer Reviewed…

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Beta Testers Needed for AnemoCheck Mobile App

January 28, 2021

Cure HHT and Sanguina have been working together to beta test a new smart phone app that will allow users to check their hemoglobin anytime with their smartphone. We previously…

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NEW Research Surveys Available!

January 28, 2021

The Cure HHT Research Network (“CHRN”) is an HHT patient-led research network that encourages the sharing of ideas among patients, scientists, and physicians. The CHRN aims to bring safe, effective…

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Navigating Through Brain’s Vasculature: A Trip to UCSF’s Neuro Cath Lab

January 15, 2016

medGadget | 2016

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“Think Like a Doctor: The Quarterback’s Headache” (Part 2) by Lisa Sanders, M.D.

September 4, 2015

“[w]e challenged Well readers to take on the case of a 15-year-old boy with the worst headache of his…

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Quarterback

“Think Like a Doctor: The Quarterback’s Headache” (Part 1) by Lisa Sanders, M.D.

September 3, 2015

“The Challenge: Can you figure out what is giving this 15-year-old boy the worst headache of his life? Every month…

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