14th HHT International Scientific Conference
On behalf of the Organizing Committee, we would like to invite you to join us in Estoril, Cascais, Portugal for the 14th HHT International Scientific Conference. We will host a Welcome Reception…
Read More
UF Health named HHT Center of Excellence
Cure HHT is excited to announce that UF Health has been named the first HHT Center of Excellence in Florida and the 31st CoE in North America. Cure HHT recognizes…
Read More
June Awareness Month
HHT Awareness Month is here, and we are expanding our reach on a world-wide level as we launch our #LetTheWorldHearUs campaign.
The world is all around…waiting to hear your voice. Sharing your HHT experiences—the good and the bad—can make all the difference. By joining us this Awareness month, together we can reach the ears of the health care industry, legislative decision-makers, and the global population to bring awareness forth about a disease that impacts 1 in 5000 people worldwide. With 90% of HHT patients still undiagnosed, HHT has gone unheard for far too long. We need to change that once and for all!
Read More
HHT Global Awareness Day
HHT Global Awareness Day (June 23rd) Get loud and #LetTheWorldHearUs In recognition of awareness day, we’re giving a 10% discount on all items purchased from our store on June 23rd!…
Read More
E-News: Insider Connection
Check out our latest E-News! Delivered monthly, straight to your inbox – stay up to date on all things HHT including research, clinical trials, webinars, awareness, educational opportunities and more!…
Read More
Strides for Strength
Join members of the HHT community around the world for our 3rd annual global virtual walk for a cure! We are excited to officially kick off registration for our 3rd annual Strides for…
Read More
Afraid of Spiders? When Telangiectasia is More than just Spider Veins
La Jolla Light | 2017
Read More
Dan Siani’s legacy grows with fight against HHT, disease that took his life
Staten Island Live | 2016
Read More
“Think Like a Doctor: The Quarterback’s Headache” (Part 2) by Lisa Sanders, M.D.
“[w]e challenged Well readers to take on the case of a 15-year-old boy with the worst headache of his…
Read More
“Think Like a Doctor: The Quarterback’s Headache” (Part 1) by Lisa Sanders, M.D.
“The Challenge: Can you figure out what is giving this 15-year-old boy the worst headache of his life? Every month…
Read More