Latest News

Announcements, Blog Posts, News Articles

CDC Features HHT in Popular Webinar Series

August 6, 2021

One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how…

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Barrow Neurological Institute named new HHT Center of Excellence

June 30, 2021

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of…

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Cure HHT Spring 2021 Newsletter: Now Available!

June 28, 2021

Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as a pdf or Flipbook.

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New HHT-HTC Treatment Centers

June 23, 2021

Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine Hemophilia and Coagulation Disorders Program, as well as the Indiana Hemophilia & Thrombosis Center, Hemophilia…

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Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

June 16, 2021

Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare disease podcast, featuring Marianne Clancy – Executive Director at Cure HHT. Listen to the full…

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30 Years Strong Highlights

June 8, 2021

With your support, Cure HHT has accomplished so much, and the best is yet to come! As we launch our 30th Anniversary Year, we look back at just a few…

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Dan Siani’s legacy grows with fight against HHT, disease that took his life

September 13, 2016

Staten Island Live | 2016

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What is HHT and Might I have it?

June 1, 2016

The Scope | 2016

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Navigating Through Brain’s Vasculature: A Trip to UCSF’s Neuro Cath Lab

January 15, 2016

medGadget | 2016

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“Think Like a Doctor: The Quarterback’s Headache” (Part 2) by Lisa Sanders, M.D.

September 4, 2015

“[w]e challenged Well readers to take on the case of a 15-year-old boy with the worst headache of his…

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Quarterback

“Think Like a Doctor: The Quarterback’s Headache” (Part 1) by Lisa Sanders, M.D.

September 3, 2015

“The Challenge: Can you figure out what is giving this 15-year-old boy the worst headache of his life? Every month…

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