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What the HHT?

A blog for the HHT community

A WIN on Capitol Hill for HHT!

By Riley Blevins | January 28, 2021 |

You may recall that back in November 2020, Cure HHT reached out for help to urge the Senate to correct an oversight related to the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP) and add “vascular malformations” back among the conditions eligible for study – a designation that has advanced HHT research since 2015. Our…

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Beta Testers Needed for AnemoCheck Mobile App

By Riley Blevins | January 28, 2021 |

Cure HHT and Sanguina have been working together to beta test a new smart phone app that will allow users to check their hemoglobin anytime with their smartphone. We previously invited you to complete a survey to determine your eligibility to participate in the beta testing for the app. Phase 1 of the beta testing…

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North American Standard of Care for the Screening of Brain & Lung VMs

By Riley Blevins | January 14, 2021 |

There is always excitement associated with the publication of one of our important research studies as it provides significant information for patients and their providers in managing care. This study, recently published in Vascular Medicine, focuses on screening practices for pulmonary (PAVMs) and vascular malformations (VMs). Cure HHT is able to provide FREE access to…

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Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)

By Riley Blevins | January 13, 2021 |

Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information surrounding COVID-19 and HHT from leading experts who have been on the frontlines since the very beginning of the COVID-19 pandemic. This interdisciplinary group of experts from across our HHT North American Centers of Excellence will discuss the multiple aspects…

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