What the HHT?
A blog for the HHT community
Front Page Announcements
Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast
Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare disease podcast, featuring Marianne Clancy – Executive Director at Cure HHT. Listen to the full episode on Wednesday 6/23, HHT Awareness Day! This FREE podcast will be available through the Biorasi website and on all major podcast streaming platforms including…
Read More30 Years Strong Highlights
With your support, Cure HHT has accomplished so much, and the best is yet to come! As we launch our 30th Anniversary Year, we look back at just a few of the many successes that donors like you have made possible! Together, we have built an amazing foundation – expanding expert clinical access, funding research,…
Read MoreNuts and Bolts of a Clinical Trial – PATH-HHT Study (Recorded)
Nuts and Bolts of a Clinical Trial PATH-HHT Study Dr. Vivek Iyer, Director of the HHT Center of Excellence at Mayo Clinic and local site Principal Investigator for PATH-HHT Study, and Dr. Keith McCrae, Principal Investigator overseeing the PATH-HHT Study at the Cleveland Clinic HHT Center of Excellence introduce the audience to clinical trials, including…
Read MoreMeta: Accelerating Research on Rare Diseases
March 19, 2021 | Meta | By Jennifer L. Minnick “At a recent workshop about Meta, Executive Director of Cure HHT Marianne Clancy noticed a new scientific paper about the rare disease she’s focused on curing — in the form of a case report from Sudan. Hereditary Hemorrhagic Telangiectasia, or HHT, is a genetic disorder that causes…
Read MoreFriends Virtual Trivia
Do the names Monica, Chandler, Ross, Rachel, Joey and Phoebe ring a bell? Then don’t miss Charm City’s “Friends” themed Trivia Night. Charm City is hosting their weekly Sunday Trivia Night for charity on April 11th, 2021 @ 8:00 pm (EDT) to benefit Cure HHT. Tickets are $15.00 and a portion of all proceeds will…
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