What the HHT?
A blog for the HHT community
Blog
Important FDA Update Regarding Iron Infusions
There’s been a change to the safety label for Injectafer®, an iron infusion often used to treat iron deficiency. The FDA now includes HHT as a risk factor for developing symptomatic hypophosphatemia (low phosphate levels), a condition that can affect up to 70% of patients who receive Injectafer. This important update comes from Cure HHT’s…
Read MoreCure HHT’s 2024 Impact Report
2024: A Year of Significant Transformation and Progress Every year is a different chapter in our story – each bringing us closer to our ultimate goal.. But 2024 was defined by new especially significant and meaningful results in moving science and research forward. This year, thanks to the efforts of our new Therapeutic Development team,…
Read MoreYour donations do more than you may realize
Hi! For those who may not know me, I’m Cassi Friday and I’m the Director of Research here at Cure HHT. That’s not the only hat I wear — My husband, Anthony has HHT, and I’m a mom of three little kiddos, two who also have HHT. It goes without saying, I’m deeply passionate about…
Read MoreMore Than A Nosebleed: In Loving Memory of Harper
Turning two-years old comes with many changes— from growth spurts to a surging vocabulary. But as her little Harper grew, Rebecca Newman noticed a concerning development: blue fingertips and lips. Immediately, Rebecca knew she had to seek medical care. Once referred to the New Orleans hospital PICU for testing in October of 2021, a cardiologist…
Read MoreMore Than A Nosebleed: Buddy’s Story
For years, no one could explain Buddy Pitts’ chronic nosebleeds. Raised as a self-described “military brat,” he received a range of hypotheses from Army doctors, who speculated that the bleeds could be caused by anything from bone spurs to even leukemia. Still without answers, Buddy says he eventually just learned to deal with the bleeding…
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