What the HHT?
A blog for the HHT community
Posts by Riley Blevins
HHT Scientific Advancement Through Federal Grants
Learn more about the progress made by Feinstein Institute for Medical Research, federal grant recipients for HHT scientific research. The Department of Defense grant awarded to the Feinstein Institute was advocated for and leveraged by Cure HHT. Cure HHT community support and donations made this possible!
Read MoreHHT in the News – “What can cause a headache and a nosebleed?”
Medical News Today – “A small-scale study from 2014 looked at the association between migraine and nosebleeds in people with hereditary hemorrhagic telangiectasia (HHT). HHT is a rare genetic condition that causes blood vessels to develop abnormalities. People in the study often had nosebleeds and migraine episodes at the same time…”
Read MoreCleveland – “Woman Undergoes Brain Surgery to Remove Deadly AVM, Caused by Rare Genetic Condition”
Cleveland Clinic – “Every time Lindsay Vos got a throbbing headache, or felt weakness on the left side of her body, she wondered how much longer she would survive. Since 2011, during her senior year at the University of Toledo, the former basketball star…”
Read MoreHHT in the News – Wisconsin
KENOSHA — For most of his life, Mark Schnuck has had nosebleeds. Some have been minor, others severe, but they have just been something the Pleasant Prairie man says he has come to live with…
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