What the HHT?
A blog for the HHT community
Posts by Riley Blevins
WMAR Baltimore: Musician with rare disease overcomes health scare
March 9, 2022 | WMAR Baltimore | By Abby Isaacs. Musician with rare disease overcomes health scare – “A rare disease turned a Maryland man’s life upside down and it all started with one symptom. Now that he has a treatment plan that works, he’s sharing his story, hoping it helps others to get diagnosed early.”…
Read More13th Annual Stoner Open
13th Annual Stoner Open July 8, 2022 | 1:30 p.m. (EST) Farmstead Golf & Country Club Spend the day on the green to support Cure HHT! Join Steve Stoner and friends at the Farmstead Golf & Country Club in Lafayette, NJ for the 13th year in a row to support an important cause. Let’s make…
Read MoreCure HHT Spring 2022 Newsletter Flipbook
Register Now! Patient & Physician Conference
Patient & Physician Conference Virtual | April 29 – May 7, 2022 The Cure HHT Academy is pleased to present its 1st Virtual Patient/Physician Conference this spring. The conference is a nine-day learning and information gathering extravaganza featuring: Patient and physician focused tracks – select any or all of the nine tracks and curate a…
Read MoreHopkins Patient Survey: How Does HHT Affect You?
The HHT Center of Excellence at Johns Hopkins School of Medicine invites you to participate in a research survey related to how symptoms of HHT have impacted you in your daily life.
This is a Cure HHT-funded research grant and participation will help make advancements in the clinical treatment of HHT, and better understand how the disease affects patients’ physical, emotional, and mental health.
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