What the HHT?

A blog for the HHT community

Posts by Nicole Schaefer

Hot off the Press! Spring Newsletter 2018 v2

Check out the Cure HHT Spring Newsletter 2018 Volume 2. This issue includes a publication in The Journal of Pediatrics on the Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population, an update on HHT research, HHT Awareness month activities, new education materials and resources for genetic testing and much more.…

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Cure HHT Conference

SAVE THE DATE October 20-21, 2018 Ann Arbor, Michigan   WE ARE COMING TO YOU! Cure HHT is thrilled to announce that we will be hosting a conference this fall in Ann Arbor, Michigan, an area that is underserved but has HHT Centers of Excellence in neighboring states. We will be bringing conference speakers representing…

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The First Comprehensive Book on “Living with HHT”

Living With HHT Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia Paperback, 200 pages   Sara Palmer, PhD and Johns Hopkins University Press announce the first comprehensive book on HHT, released in December 2017. Sara addresses how HHT patients can maintain their own emotional health, help other family members including children, partners and parents, and live life as fully as…

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