What the HHT?

A blog for the HHT community

Posts by Nicole Schaefer

My HHT Tracker App – Download Now!

Make 2019 the year you take charge of your HHT!  Improve your health and understanding of the disease with “My HHT Tracker” now available globally on iOS. The free app allows you to privately track your health daily, store your data, organize medical tests, track nosebleeds — and only share your information with your health…

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SURVEY: My HHT Tracker

Have you already downloaded My HHT Tracker? Have you been using the app to track your nosebleeds?   We would love your feedback. In less than two minutes you can share your experience and help us improve the app’s functionality. “I downloaded the app in November. I have only been tracking my nosebleeds so far, but has worked…

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Comprehensive HHT Resource: Living with HHT Book

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of…

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Webinar: Screening and Treatment of Brain AVMs in HHT

Monday, March 25, 2019 7:00pm – 8:00pm EST Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. Please join Dr. Issam Awad, Director of the University of Chicago HHT…

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HHT International Scientific Conference

On behalf of the Organizing Committee, we would like to invite you to join us in Rio Grande, Puerto Rico for the 13th HHT International Scientific Conference. We will host a Welcome Reception on June 12th and scientific sessions on June 13-16, 2019. The 2019 meeting will bring together the world’s leading HHT experts in both basic research as well…

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