What the HHT?

A blog for the HHT community

Posts by Nicole Schaefer

Webinar: My HHT Tracker

Monday, October 29, 2018 7pm – 8pm EDT   (6pm central / 5pm mountain / 4pm pacific) Join Peter Lauwers, developer of “My HHT Tracker”, as he walks you through all of the features of this FREE new iOS App for HHT patients. My HHT Tracker allows you to track your HHT symptoms, appointments, and doctors…

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Did you know that HHT can be fun?

Cure HHT Patient & Physician Conference October 20-21, 2018 Ann Arbor, Michigan   Do you have kids ages 6-16? If so, the Kidz Club is a FUN place to be while parents are attending the Cure HHT Conference adult program in Ann Arbor, MI Oct. 20-21. The Kidz Club is a program designed to help…

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Did you know there is help for Living with HHT?

Cure HHT Patient & Physician Conference October 20-21, 2018 Ann Arbor, Michigan   HHT is medical condition that can have significant social impact on the patient and their family members. The psychological aspect of HHT cannot be ignored. Dr. Sara Palmer is a clinical psychologist and HHT patient who has experienced family denial, passing the…

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Volunteers are the cornerstone to our success!

Cure HHT Patient & Physician Conference October 20-21, 2018 Ann Arbor, Michigan     Be part of the Cure HHT team! It “takes a village” to host a conference and with our lean staff, volunteers are the cornerstone of our success. We are so grateful to our speakers who volunteer their time to present critical…

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