What the HHT?

A blog for the HHT community

Posts by Nicole Schaefer

Recorded WEBINAR: IVF and Pre-Implantation Genetic Testing for HHT

On July 16th, Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talked about pre-implantation genetic testing (PGT), including what you might consider before pursuing PGT. In addition, options for determining if a child has HHT through genetic testing before and during pregnancy, as well as after birth were discussed.…

Read More

Raising HHT Awareness in Puerto Rico

CURE HHT and THE UNIVERSITY OF PUERTO RICO SCHOOL OF MEDICINE ARE EXCITED TO ANNOUNCE HHT Grand Rounds Tuesday, June 11, 2019 8:00 AM – 10:00 AM Spread the word …. Share this printable flyer!   Location Conference Room A and B Pediatric Hospital at Centro Medico University of Puerto Rico Medical Science Campus San…

Read More

Stanford’s Avastin Study is Complete!

Cure HHT is excited to announce that “A Randomized Controlled Trial of Bevacizumab for HHT-Related Epistaxis” (aka “Avastin Trial”) conducted at Stanford University recruited its last patient on February 5, 2019! THANK YOU to the 40 HHT patients who participated in the Avastin trial, many of whom traveled across the country to Palo Alto, California,…

Read More

Save The Date – Florida Conference 2019

HHT Patient & Physician Conference September 21-22, 2019 Marriott Pompano Beach Resort & Spa Pompano Beach, Florida   WE ARE COMING TO YOU!  Cure HHT is thrilled to announce that we will be hosting a conference this fall in Pompano Beach, Florida (near Fort Lauderdale). Florida is a large state and is underserved by knowledgeable specialists…

Read More