What the HHT?

A blog for the HHT community

Posts by Nicole Schaefer

WEBINAR: HHT Overview and Screening Guidelines

When: April 19, 2018 from 7:00-8:00pm EST Presented by: Dr. Mollie Meek, Director at University of Arkansas Medical Sciences HHT Center of Excellence Join Dr. Mollie Meek  for an introduction to the basic clinical features of HHT including the Curacao diagnostic criteria. This session will also discuss the clinical features of HHT for adults and…

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Register Now! HHT Regional Conference in Tennessee

April 14-15, 2018 Cure HHT is thrilled to announce that we will be hosting a Regional Conference this spring in Nashville, Tennessee, an area that is underserved but has HHT Centers of Excellence in neighboring states. Conference speakers will be representing HHT Centers in Arkansas, Georgia, Maryland and Ohio. Read More >>  

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WEBINAR: The 50 State Challenge – An Introduction

When: March 28, 2018 from 7:00-7:30pm EST Presented by: Allyson Clancy, Cure HHT Community Engagement Manager Join Allyson Clancy for a 30-minute webinar as she walks us through the 50 State Challenge, why it is important for HHT patients and families and how to join the Challenge. A cure is on the horizon, we just…

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The First Comprehensive Book on “Living with HHT”

Living With HHT Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia Paperback, 200 pages   Sara Palmer, PhD and Johns Hopkins University Press announce the first comprehensive book on HHT, released in December 2017. Sara addresses how HHT patients can maintain their own emotional health, help other family members including children, partners and parents, and live life as fully as…

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