What the HHT?

A blog for the HHT community

Posts Tagged ‘Cure HHT’

SURVEY: COVID-19 and Rare Disease Research

Cure HHT has partnered with Genetic Alliance and we need your help! Your voice is urgently needed in the fight to end COVID-19 through a 5-minute survey. You can fight this virus with information and without leaving home! Whether you are currently feeling healthy or in need of medical attention, understanding YOUR specific circumstances can help scientists study…

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Cure HHT Actualizaciones Oficiales de Salud: Coronavirus Disease (CV)

CURE HHT DECLARACIÓN OFICIAL:  CORONAVIRUS (CV) Traducido por Marcel Serra, MD – Director, Unidad HHT Hospital Italiano de Buenos Aires Ponerse al día: 17 de Abril 2020 BLOOD CLOTS, COVID-19 and the HHT COMMUNITY Guidance from the North American Cure HHT Scientific and Medical Advisory Council Authors: Dr. Raj Kasthuri, Director, University of North Carolina,…

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Cure HHT Official Health Updates: Coronavirus Disease (COVID-19)

CURE HHT OFFICIAL STATEMENT COVID-19 Traducción Española Update:  April 17, 2020 | BLOOD CLOTS, COVID-19 AND THE HHT COMMUNITY Dr. Raj Kasthuri, Director, University of North Carolina, Chapel Hill HHT Center of Excellence Dr. Hanny Al-Samkari, Associate Director, Massachusetts General Hospital HHT Center of Excellence Guidance from the North American Cure HHT Scientific and Medical…

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Courage

Sometimes lessons of courage come from the smallest of humans.  Anthony was only 7 years old when we discovered he had an eight-centimeter AVM in his brain! Six months prior to this discovery, Cure HHT had published guidelines on how to treat pediatric patients with HHT. At the time, Anthony was being followed by our…

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Patient & Physician Conference – Washington (Postponed)

Hyatt Regency – Bellevue, Washington **POSTPONED** Join us at our Patient & Physician conference in Washington for a unique education experience in the near future! This conference has been postponed from May 2020 due to health concerns related to COVID-19. Check back soon for updates on new dates and open registration.

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