Nosebleeds or Epistaxis
Resources to guide physicians in the management of epistaxis.
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Knowledge is Power: The 5 Biggest Changes in HHT Care (Recording)
Webinar – 2026Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at an HHT Center of Excellence – this session is a must. In this Cure HHT webinar recording, we walk th…
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Comprehensive Guide to Managing Your Nosebleeds (Recording)
Webinar – 2026If you live with hereditary hemorrhagic telangiectasia (HHT), you already know nosebleeds (epistaxis) aren’t “just annoying”—they can disrupt daily life, drive anxiety, and in some cases lead to serious complications. In this Cure HHT webinar recordi…
MoreIron Replacement in HHT
Policy Statement – 2025Iron deficiency anemia is common in people with HHT with an estimated prevalence of 50%. Further, a number of people with HHT develop symptomatic iron deficiency without anemia. Iron deficiency is an under recognized and sub-optimally managed complic…
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A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded)
Webinar – 2024Join us to learn about sclerotherapy, an innovative treatment offering hope to HHT patients suffering from chronic nosebleeds. Dr. Jay Piccirillo, ENT at Washington University, explains how this minimally invasive therapy works, its benefits, who qua…
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United States Map of Nasal Sclerotherapy Providers
Patient Tool, Provider Tool – 2024This Map shows the current US HHT experts that perform nasal sclerotherapy as of November, 2024. This image was created by Dr. Jay Piccirillo at Washington University. Please note that local providers may also offer nasal sclerotherapy.
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Pazopanib: A Groundbreaking Trial for HHT (Recording)
Webinar – 2023Get your questions answered about our newest clinical trial! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is eligible, what Pazopanib is and how you can get involved!
MoreAbstracts – 14th HHT International Scientific Conference (2022)
Scientific Literature – 2023Angiogenesis. This article is open access and free for a certain period of time; otherwise, it is available for purchase directly from the publisher. Click to view resource.
MoreExecutive Summary – 14th HHT International Scientific Conference (2022)
Scientific Literature – 2023Angiogenesis. This article is open access and free for a certain period of time; otherwise it is available for purchase directly from the publisher. Click to view resource.
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Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument
Scientific Literature – 2022Blood Advances. Authors: Raj S Kasthuri, Shruti Chaturvedi, Sonia Thomas, Nathan Vandergrift, Carla Bann, Nicole Schaefer, Marianne S Clancy, Reed Pyeritz, and Keith R McCrae. This article is available for public use and does not require purchase. Cl…
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Bedside to Bench: How the HHT Community Drives Research Initiatives (Recorded)
Webinar – 2021In March 2020, Cure HHT was 1 of 30 organizations selected to participate in the Chan Zuckerberg Initiative (also known as CZI) Rare is One Project. This ambitious project is lifting up the work that patient communities are doing to accelerate resear…
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Las Guías Internacionales de HHT: Epistaxis – Tratamiento Farmacológico (Grabado)
Español, Webinar – 2021El Dr. Marcelo Serra, Director de la Unidad de HHT del Hospital Italiano de Buenos Aires brinda información sobre el tratamiento farmacológico no quirúrgico del sangrado nasal en HHT. También revisó las recomendaciones de las nuevas Directrices inter…
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Giving hereditary haemorrhagic telangiectasia the attention it deserves
Article – 2021The Lancet Haematology. Author: Hanny Al-Samkari, MD. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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International HHT Guidelines: Epistaxis/Nosebleed Management (Recorded)
Webinar – 2021Dr. Jay Piccirillo, ENT, Washington University HHT Center of Excellence and Dr. James Gossage, Director, Augusta University HHT Center of Excellence discuss the new International HHT Guidelines for Epistaxis (Nosebleed Management). Both doctors are r…
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Las Guías Internacionales de HHT: Epistaxis en HHT (Grabado)
Español, Webinar – 2021La Dra. Yesica Lijdens, Otorrinolaringóloga de la Unidad HHT Hospital Italiano de Buenos Aires, y el Dr. Federico Urquiola, Otorrinolaringólogo y Coordinador ORL de la Unidad HHT Hospital Italiano de Buenos Aires, brindan información sobre cómo trata…
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International HHT Guidelines – Overview (Recorded)
Webinar – 2021Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. F…
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New Evidence, Clearer Urgency: What the Latest HHT Study Shows
A major new study published in Blood shares early findings from CHORUS, the first national U.S. registry created to track the real-world impact of HHT. The report includes data from the first 600 part…
16th HHT International Scientific Conference
March 4, 2026
Knowledge is Power: The 5 Biggest Changes in HHT Care
December 4, 2025
Comprehensive Guide to Managing Your Nosebleeds
December 1, 2025
