Anemia/ Iron Deficiency
Resources addressing anemia/iron deficiency including causes, symptoms, and treatment options.
Related Resources
HHT: Diagnosis and Management from the Hematologist’s Perspective
Scientific Literature – 2018This review discusses the biology of HHT, management issues that face the practising hematologist, and considerations of future directions in HHT treatment. The diagnosis of hereditary hemorrhagic telangiectasia is clinical, based on the Curaçao crit…
MoreHHT: Diagnosis and Management from the Hematologist’s Perspective
Scientific Literature – 2018Haematologica. Authors: Athena Kritharis, Hanny Al-Samkari, and David J Kuter. This article is available for public use and does not require purchase. Click to view the full article.
MoreAvastin Indication Table
Article – 2018Table detailing Criteria for IV Bevacizumab (Avastin) Use for Epistaxis and GI Bleeding. Resource taken from: Iyer, V. N., Apala, D. R., Pannu, B. S., Kotecha, A., Brinjikji, W., Leise, M. D., … Swanson, K. L. Intravenous Bevacizumab for Ref…
MoreIntravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia Related Epistaxis and Gastrointestinal Bleeding
Scientific Literature – 2018Mayo Clinic. Authors: Vivek N. Iyer, MD, MPH; Dinesh R. Apala, MBBS; Bibek S. Pannu, MBBS; Aditya Kotecha, MBBS; Waleed Brinjikji, MD; Michael D. Leise, MD; Patrick S. Kamath, MD; Sanjay Misra, MD; Kebede H. Begna, MD; Rodrigo Cartin-Ceba, MD; Hilary…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreAbstracts – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Iron Preparation Charts
Article – 2017This table of iron products, dosages and general comments was developed by Dr. Raj Kasthuri, Hematologist and Director of the UNC Chapel Hill HHT Center to be a resource for HHT patients and physicians. As with any medical condition, an HHT patient s…
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Pumping Iron in HHT
Article – 2017This handout by Ronalee Robert, Registered Dietician at the St. Michael’s Hospital HHT Center in Toronto, Canada was developed for the Patient & Family Conference held in Orlando, Florida. It covers all of the pertinent topics relating to iron in…
MoreLow Iron Levels and Blood Clots in HHT
Article – 2017You probably know that people with HHT are often short of iron because of bleeding, particularly from the nose. Being short of iron is what makes you anemic. But how does this fit in with blood clots? The big message for people with HHT is that they…
MoreIron Deficiency in HHT
Article – 2017Iron deficiency is common among HHT patients and is primarily a consequence of bleeding from telangiectasias in the lining of the nose and intestinal tract. Iron deficiency tends to be both under-diagnosed and under-treated in HHT patients. and can l…
MorePrevalence and predictors of anemia in HHT
Scientific Literature – 2017American Journal of Hematology. Authors: Kasthuri, RS, Montifar, M., Nelson, J., Kim, H., Lawton, MT, Faughnan, ME, and the Brain Vascular Malformation Consortium HHT Investigator Group. This article is available for public use and does not require p…
MoreAbstracts – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
MoreFeraheme: Prescribing Information
Scientific Literature – 2015Highlights for prescribing information for Feraheme from AMAG Pharmaceuticals, including but not limited: Indications for usage, dosage and administration, contraindications, adverse reactions, clinical studies and patient counseling information.
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New Evidence, Clearer Urgency: What the Latest HHT Study Shows
A major new study published in Blood shares early findings from CHORUS, the first national U.S. registry created to track the real-world impact of HHT. The report includes data from the first 600 part…
16th HHT International Scientific Conference
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Knowledge is Power: The 5 Biggest Changes in HHT Care
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Comprehensive Guide to Managing Your Nosebleeds
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