Skin
Resources for understanding and treating skin telangiectasias (small red spots that disappear when pushed on) and treatment options.
Related Resources
How to Be an HHT Changemaker Part 1: Drive Research
Webinar – 2024Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Co…
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A Comprehensive Guide to Managing Your HHT
Brochure, Fact Sheet, Patient Tool – 2022We’ve taken the International HHT Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Gui…
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International HHT Guidelines – Overview (Recorded)
Webinar – 2021Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. F…
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Diagnosis of HHT
Fact Sheet – 2021Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.
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My HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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Physician Fact Sheet
Fact Sheet – 2020A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…
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HHT is More than a Bleeding Nose – What an ENT Doctor Needs to Know About HHT and Why.
Video – 2018Professor Anette Kjeldsen, Member of the VASCERN HHT Working Group and the HHT Center of Excellence at Odense University Hospital, Denmark, provides and overview for Ear, Nose & Throat (ENT) Doctors in order to help them properly recognize the s…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Pulsed Dye Laser Treatment
Article – 2017Dermatology is a specialty not commonly represented in the HHT medical community but many HHT patients experience symptoms relating to their skin. This handout defines a vascular lesion, explains how a pulsed dye laser (PDL) works, PDL side effects,…
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What’s the Skinny on HHT? (recorded)
Webinar – 2017Dr. Richard Antaya, Professor of Dermatology and Pediatrics and Director of Pediatric Dermatology at Yale University HHT Center of Excellence, explores what’s hiding in and under those red spots on your skin, lips and tongue known as telangiectasias….
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
MoreJAMA Clinical Challenge – Red Papules on the Tongue of a Patient with Hemiparesis
Scientific Literature – 2014JAMA. Authors: Hsien-Yi Chiu, MD and Sung-Jan Lin, MD, PhD. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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HHT Kids Day – San Francisco
Do you live near San Francisco? We have an event for you! HHT Kids Day, co-hosted by UCSF HHT Center of Excellence and Cure HHT at the California Academy of Sciences Museum promises to be an amazing d…
E-News: Insider Connection
January 8, 2024
