Lungs
Resources for understanding issues that affect the lungs in HHT patients including lung AVMs and pulmonary hypertension. This section will include screening recommendations and treatment options.
Related Resources
My HHT Care Checklist
Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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My HHT Pulmonary AVM Care Checklist
Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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Ask the Doctor: HHT and Pulmonary Hypertension (recorded)
Webinar – 2020Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver Programs at the Pulmonary Hypertension Association, discuss the dual diagnoses of Hereditary Hemorrhagic Telangiectasia (HHT) and Pulmonary Hypert…
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PH and HHT Patient Brochure
Brochure – 2020Did you know that if you have HHT you are at risk for Pulmonary Hypertension? The Pulmonary Hypertension Association developed a brochure for PH and HHT patients that provides answers for the most commonly asked questions. There are several HHT Cente…
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Physician Fact Sheet
Fact Sheet – 2020A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…
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The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
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HHT Lung AVMs – A Tangled Web (recorded)
Webinar – 2019Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangled Web” from the Florida HHT Patient Conference. Dr. Riggans focuses on the importance of d…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MorePulmonary Arteriovenous Malformations (PAVMs) and Hereditary Hemorrhagic Telangiectasia (HHT)
Article – 2018Dr. Marie Faughnan, Cure HHT Scientific Research Director and Director of the HHT Center of Excellence at St. Michael’s Hospital / University of Toronto, provides a detailed overview of everything a medical professional needs to know about HHT and PA…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Hereditary Haemorrhagic Telangiectasia: Novel cardiopulmonary insights
Scientific Literature – 2017Author: Veronique M.M. Vorselaars. This article is available for public use and does not require purchase. Click to view the full article.
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Screening for Pulmonary AVMs
Article – 2017This handout provides HHT patients and physicians a step-by-step guide to the pulmonary (lung) arteriovenous malformation (PAVM) screening process using Contrast Echocardiography (CE).
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Prophylactic Antibiotics
Article – 2017HHT, Antibiotics, Dental Work – How to determine if you need prophylactic antibiotics before any “dirty” procedure. With HHT, the concern is that bacteria can get into the blood stream and pass through the lungs which can then place infection anywher…
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Pulmonary Hypertension and HHT (recorded)
Webinar – 2016Dr. Murali Chakinala, Co-Director of the Washington University HHT Center of Excellence, connects the dots between HHT and Pulmonary Hypertension. He discusses how HHT can cause PH, how the combinations of these diseases affect a patient and what tre…
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HHT & Stroke
Fact Sheet – 2016Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can affect children and young adults as well. Learn what causes a stroke and how to lower your risk.
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