HHT in children

Resources for understanding the different screening and treatment needs in children.

Related Resources

Executive Summary – 11th HHT International Scientific Conference (2015)

Scientific Literature – 2015

Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…

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What Does This All Mean to Me and My Family? (recorded)

Webinar – 2015

Dr. Justin McWilliams, Co-Director of the HHT Center of Excellence at the University of California Los Angeles, highlights the recommended screening and treatment guidelines that should follow an HHT diagnosis. Dr. McWilliams discusses the need for p…

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HHT in Children: Talking to Your School Nurse (recorded)

Webinar – 2014

Leslie Perry, BSN, R.N. discusses helping children manage their HHT in a social and academic environment from the perspective of a school nurse. She offers advice for providing your school nurse with essential information, talking about HHT with othe…

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Hereditary Hemorrhagic Telangiectasia: Children Need Screening Too

Scientific Literature – 2011

Pediatric Nursing. Authors: Lynne A. Sekarski and Lori A. Spangenberg. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

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Advocating for Your Child: 504 Plan

Article – 2010

What can a parent do to help their child manage HHT and succeed in school? The Americans with Disabilities Act (ADA) is federal legislation designed to prevent discrimination based on a medical condition. Section 504 of ADA is a civil rights document…

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