COVID-19
Resources related to COVID-19.
COVID-19 is a new coronavirus named SARS-CoV-2 (coronavirus disease 2019 or COVID-19) causing a global outbreak of a respiratory illness, which was first identified in Wuhan, China in December 2019. Coronaviruses are a large family of viruses that range from the common cold to the Severe Acute Respiratory Syndrome (SARS-CoV).
Related Resources
Cure HHT Actualizaciones Oficiales de Salud: Coronavirus Disease (CV)
Español – 2021Página de Actualizaciones de salud oficiales de Cure HHT relacionada con COVID-19, que incluye actualizaciones y declaraciones oficiales, así como enlaces y otros recursos.
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NIH & Genetic Alliance – Coronavirus Vaccines (Recorded)
Webinar – 2021“Francis Collins, Director of the National Institutes of Health, shares with us why it is critical that individuals living with chronic diseases and conditions receive the coronavirus vaccine. He describes the scientific evidence for the safety and e…
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COVID Vaccine Infographic
Fact Sheet – 2021Review information related to COVID Vaccines for People with HHT including vaccine comparison chart, common myths, and special considerations for those with HHT.
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COVID-19 Official Updates Page
Patient Tool, Provider Tool – 2021Cure HHT Official Health Updates page related to COVID-19, including official updates and statements, as well as links and other resources.
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HHT and COVID-19: Basics and What We Know in HHT
Patient Tool – 2021Dr. Justin McWilliams’ presentation slides related to HHT and COVID-19 from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. McWilliams is an Interventional Radiologist and Co-Director of the UCLA HHT Center of Excellence.
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HHT and COVID-19: Vaccines
Patient Tool – 2021Dr. Marie Faughnan’s presentation slides related to HHT and COVID-19 vaccinations, from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Faughnan is a Pulmonologist and the Director of the Toronto HHT Centre of Excellence.
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HHT and COVID-19: Clotting and Anemia
Patient Tool – 2021Dr. Raj Kasthuri’s presentation slides related to HHT, COVID-19 and clotting and anemia, for the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Kasthuri is a Hematologist and the Director of the UNC HHT Center of Excellence.
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Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
Webinar – 2021A rare opportunity to receive factual information surrounding COVID-19 and HHT from leading HHT experts who have been on the frontlines since the very beginning of the COVID-19 pandemic. This interdisciplinary group of experts discuss the multiple as…
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Managing Stress and Emotional Hurdles in HHT (recorded)
Webinar – 2020Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hopkins University School of Medicine, discusses how to manage stress and emotional hurdles i…
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COVID-19: Mind over Matter (recorded)
Webinar – 2020Connect with Dr. Sara Palmer and Cure HHT staff member, Phyllis Loveland, Operations and Communications Manager, as they help you mentally navigate these challenging times of COVID-19 coupled with HHT. Join Dr. Palmer as she addresses the stressors s…
MoreCOVID-19 Fact Check Links
Patient Tool – 2020How do you know if what you are being told about COVID-19 is true? Before sharing information with friends and family, make sure you use these reliable fact check sites to verify the information is true.
MoreCOVID-19 Reliable Resources
Patient Tool – 2020When learning about COVID-19, it is important that you receive reliable information from vetted sources about COVID-19.
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2025 HHT Capitol Hill Day
2025 HHT Capitol Hill Day Wednesday, September 10, | 4-6pm ET Make a difference and let your voice be heard. Join us for an HHT Congressional Briefing in Washington, DC! Confirm your interest here.
Recording Available: Empowering Patient Stories
June 3, 2025
Cozy Games for a Cure
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Blood Drive: Boston
May 29, 2025