What the HHT?
A blog for the HHT community
Front Page Announcements
HHT in the News: “I have the same rare disease that killed my brother”
February 24 2020 | Independent.ie “As Rare Disease Day falls this Saturday, Katie Woods tells her story of living with HHT – a genetic blood vessel disorder…”
Read MoreGlobal Genes – Cure HHT’s Marianne Clancy Named “Rare Leader”
Walk & Talk – Aurora, Colorado (POSTPONED)
Aurora, Colorado Our inaugural Cure HHT Walk & Talk Event in Aurora, Colorado has been postponed due to concerns related to COVID-19. Check back soon for updates on open registration.
Read MoreHHT is Rare As One!
Cure HHT has been selected as 1 of only 30 organizations out of 287 that submitted letters of interest, to participate in the Chan Zuckerberg Initiative’s (CZI) Rare As One Network, which will provide funding, tools, expansion support, and training to create a larger, more integrated HHT community! Founded by Dr. Priscilla Chan and Mark Zuckerberg in 2015, the Chan…
Read MoreRecorded WEBINAR: The Science Behind the 2019 Scientific Conference
Now available!
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